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She did say the friability was all throughout.

So it sounds like it would be rare for his biopsies to come back abnormal if the intestines looked fairly good? Im wondering why it bled so bad when she was looking. Would the delayed gastric emptying cause the diarrhea and mouth sores and failure to thrive by chance? This is so frustrating...

So my little guy had his scopes today...he was a trooper and handled his prep like a champ...actually the cramping, accidents, and diarrhea he had with the prep is similar to his every day life so it didn't phase him. They took a bunch of biopsies. She said she didn't see anything crazy with...

Yes! Please! That would be great. We had the scopes already on the 14th at Hopkins so Im gonna do those and depending on what they say I would like to get another opinion. One of my friends works at Chop actually but she is an OT and works with brain injuries there. Do either of these skin...

He actually also got a random rash on his back that started since his fingers started really bothering him...no idea if it is related but attached a picture. He gets a ton of weird things like ulcers on the outside of his nose (I attached a picture of the latest nose ulcer he got a few months...

Wow! This is exactly how my little guy is presenting. He has been complaining about leg pain for several months which I mentioned to his ped and GI and the ped said it was probably growing pains. Now he has had stiff fingers for the past several weeks (since he mentioned it to me anyway). Oh and...

I will definitely get approval from pediatrician. There was another option they had listed instead of the exlax but it wasn't listed under his weight but im wondering if that is because he doesn't weight the normal size of a 10 yr old so they assume younger kids have issues with swallowing...

You are so kind! Thank you so much. I am so happy your kids are doing so well now! When my little guy had a hole (Laryngeal cleft) in his throat for his first 3 years of life and all doctors kept telling me it was behavioral so we did tons of therapy because he wasn’t eating solids And was...

No, I'm sorry when I reread my post it did sound like it was MY GI doctor. This is a pediatric GI at Hopkins. My pediatrician sent him back to Hopkins because we live in Maryland, and because he had his laryngeal cleft surgery at Hopkins so they have all of his background. Thank you so much...

Thank you so much for your reply. This does make me feel more confident with my decision to move forward with the scopes. Your son and daughter have crohn's? My heart goes out to you, and to them. Does it run anywhere else in your family? It's weird because my 9 year old daughter has...

I posted my son's story last week: https://crohnsforum.com/threads/10-yr-old-being-tested-for-crohns.85818/#post-1031095 And I got some really helpful and nice responses which has really awesome and encouraging so thank you!! I have another question though - his FC came back and it was only...

What were the beginning signs of the arthritis? Ive noticed he complains of his legs hurting a lot and now he is saying his hands feel weak and sore when he wakes up and his fingers sometimes hurt to bend. Thank you again!!

Thank you so much for your replies. I am sorry for all of the questions. I kinda feel like a lost puppy with all of this stuff. When he had surgery when he was 2 my mom was here and she would make me feel better about everything...since losing her a few years ago I just feel kind of alone and...

Thank so very much for your replies. Just hearing from someone makes me feel better. They just scheduled his scopes for September 14th which also happens to be my daughter's 9th birthday but he is seeming to get worse so we need to get it done. They also want him to have an MRE - would any of...

Hi there – I am posting in this forum because this is what he is being tested for. He has NOT been diagnosed as of yet but would like to get some feedback from others that are familiar with Crohns. I am in no way looking for a diagnosis from anyone…just a very concerned mama looking for...