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Hey everyone! So I see my hospitalization was announced here..I'm out now. :) it was a tough week but it was totally worth it. I had started to have extreme chest pains on the Thursday prior, and they were so bad I was staying at home on muscle relaxers just trying to get them to stop. 5 days...

Hey everyone..... I hope you are all doing well! I'm so sorry I haven't been around much lately, my illness has been at its worst the past three months (I got a full time job that has not been the best decision). I want to share some good news with you all! MY DISEASE NOW HAS A NAME!!! I am...

Yeah, I wish going part time was an option. :( Its either work 8-4 monday through friday or nothing. Thats why this is such a hard decision! Isgs, I'm sorry the scope didn't find what is causing your symptoms. :( I'm actually very surprised they put you on pred, THEN did a scope....it sounds...

Hey Everyone....I haven't been on in forever! O.O Work has pretty much taken over my life. If I'm not at work, I at home crocheting, or I'm at the community theater. I'm never just doing "nothing". Its VERY exhausting.... Health-wise, week by week I'm getting worse. I am now being seen at the...

Mayflower, my doctors are just like that too. My GI would say IBS, then I would come in the next time with very obvious signs it was not IBS (like an ulcer eating through my tounge like I got a tounge piercing) then he would almost freak, order tests, they would come back normal and he would be...

Yeah, I'm at the same point right now...some moments I just tell myself I'm giving up, other times I'm going "wait, my body wouldn't be doing all of this if nothing was wrong or if this was just chronic pain!". It is not fun at all. :( Mine is 24/7 now as well, which just makes it even more...

Mayflower, I know you must feel so frustrated, but at least your body seems to be ok. I know it doesn't feel that way though...ugh why can't our bodies just show these doctors whats going on? Anyway the drug trial sounds great, so there is a light! Keep your chin up!

Hey Bozzy! Yeah, Connective Tissue Disease is basically where you have an autoimmune disease where your connective tissue is being attacked. There is connective tissue in between your intestines, and it can cause crohns-like symptoms. It is very similar to Lupus and is treated with the same...

Cat, that is so weird about the tomatoes. Are you sure its tomatoes? I just couldn't see it being in your system that long. I am the same way with gummy candy...love it, but it doesn't get digested. It causes pain at the same time though. But I have seen the same type of thing in my BM's before...

Hello Lynds, Yes, that does sound like you could have Crohn's. :( Have you been referred a to GI? The next step is going to be more tests, like a colonoscopy to see what is going on inside your intestines. I know all of this is really scary, but Crohn's symptoms can be treated and the disease...

Alcohol hates me too. With my meds I get drunk really fast, and then my pain hates it too. My husband tried using alcohol for pain relief once or twice, and one time I just chugged it, and as soon as it hit my stomach I was in tears. I avoid alcohol now. I'm trying my best to keep my weight up...

Chell, a few of us here have had the pill cam...myself, Cat, and Sunshine to name a few. You will probably have to prep for it, and it is the same prep as a colonoscopy. Its actually a very easy test! Just swallow a giant pill and wear a pack that receives the images for awhile. Then a doctor...

I understand how you feel star, I wonder all the time about my my large amount of sleep and wonder if it is habit or need. I usually sleep 8-10 hours at night (once my body finally falls asleep) and then another 2 hours during the day. I think mine is a need as well....the other day I got up and...

Thanks MayFlower and Cat. They just took me off the prednisone and the plaquenil, because my rheumy has no say on my pain meds because my GP is my sole provider on my narcotics. I'm on both tramadol and Tylenol 3's to try and manage my pain...three tramadol a day and 1 to 2 tylenol 3's a night...

Hey everyone. I have again gotten completely behind. I feel terrible about it. :( I am going to try really hard to keep up with you guys. I haven't been on my computer much lately, way too much has been going on. My appointment last week was a nightmare. Literally, it went a way I never...

I have heavily thought about ordering my tramadol online as well. My situation has actually changed since that post. My GP has decided that she needs to watch my pain meds like a hawk....she will only give me one months supply at a time, and actually only gave me 2 weeks supply during my last...

Hello everyone! I'm sorry I haven't been around much lately....my flare just keeps getting worse and worse. I've been trying to keep up with all of my activities but its hard! I'm not going to be able to completely catch up here in this thread, but I do want to welcome all the new members...

Don't feel like a wuss!! I completely understand where you are coming from. In the beginning I only took tramadol every few days, and I still freaked out when I was running low. Its like a safety net for us..this pain isn't anything to play with! I have a really high threshold for pain too...

Wow, I'm surprised your PBGYN did that for you! My specialists are the same way with tramadol, they have always made sure I have plenty. But they were more directly related to my illness. I actually went to my GP today because of my pain situation, and she heard me loud and clear. Because of...

Star, good luck! I hope they test you for more too. I'm on 5mg of pred too, and while it helped when I wasn't doing so bad, it isn't helping at all anymore. So I understand what you mean. So I have had an interesting day after a terrible weekend. I spent the weekend on the couch, on lots of...