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  1. allieinwonder

    Undiagnosed Club Support Group

    Sunshine, I am so happy you have been given the right diagnosis this time! That's fantastic! Now its time to try and take it easy and let the meds do their magic, how ever long that may be. Cat, That is so weird that your GI wanted to take you off the meds for only a week! How weird.....I hope...
  2. allieinwonder

    Undiagnosed Club Support Group

    I have one of those microwaveable things too! They work wonders. :) Ever, I hate when I have rough nights like that! My D has been especially bad lately and it has been interrupting my sleep all week. So I've been SUPER cranky and lazy all day. :( I hope you are able to get a good night sleep...
  3. allieinwonder

    Undiagnosed Club Support Group

    Hey everyone! We ended up not going on the trip...I was getting really worried and Stuart ended up cancelling it. We spent the 4 day weekend at home. Last night we tried to play a video game together and I started to cramp up, ran to the bathroom, and ended up throwing up and having D at the...
  4. allieinwonder

    Undiagnosed Club Support Group

    I hope everyone had a good valentines day! Ever, I was on ami at one point too, again to treat IBS. It never did anything for me. They then tried something similar, nortryptiline, which again did nothing. Sunshine, I hope you are feeling better! My last CT scan was a awful experience too. :(...
  5. allieinwonder

    Undiagnosed Club Support Group

    Good luck Sunshine! Everything is going to be ok! At the end of the day this will be over and it wil just be a nightmare in your past. Hang in there!
  6. allieinwonder

    Undiagnosed Club Support Group

    Thanks for the kind words guys. :) I woke up this morning with a fever and pain, so I'm taking it easy. Cat, have you figured out whats wrong with miss Lilly? I hope your business trip is going well! Sunshine, good luck with the CT! That barium is sooooo nasty. :( My best tip is to drink it...
  7. allieinwonder

    Undiagnosed Club Support Group

    I hate when my emails stop for this thread! I feel like I get so behind! Thanks for the kind words about the pain meds. It was a huge relief to pick up a script for 90 of them and know that I have two refills after that. I'm set for atleast 3 months! I went and got some other medical stuff...
  8. allieinwonder

    Pain medication and addiction in Crohn's Disease

    I'm glad you are finally getting help for the pain Maria!
  9. allieinwonder

    Undiagnosed Club Support Group

    No, because they don't carry Xanaflex, and the muscle relaxers they have I have tried in the past and they didn't work. I am just using unisom now.
  10. allieinwonder

    Undiagnosed Club Support Group

    Good luck with the new job phear! I was able to get the tramadol sorted out, thank goodness. It took an hour to get fixed, but in the end she easily just changed my perscription from 30 to 90. She thought I had overused my prescription at first, and called me back to her office to lecture me...
  11. allieinwonder

    Pain medication and addiction in Crohn's Disease

    Maria, I'm so sorry you are going through that. I agree with others, get a new family doctor. I have been on pain meds since my disease started June of 2010, and I can't imagine what it would be like without those meds. I am on a pain med that is specifically for chronic pain called Tramadol...
  12. allieinwonder

    Undiagnosed Club Support Group

    Thanks everyone. I am really worried at this point. I have had the possibility of running out of meds before but not like this. I'm going over there as soon as this tramadol kicks in (seems to be taking a long time...), and I am NOT leaving until I talk to my GP if it gets to that point. She...
  13. allieinwonder

    Undiagnosed Club Support Group

    So I'm in a bit of a pickle... You know how my GP messed up my perscriptions, giving me Xanax instead of Xanaflex? Well, she messed up my tramadol too. I explained to her so many times that I take 1-3 a day for the pain to have a better quality of life. She said it was fine. Today I tried to...
  14. allieinwonder

    Undiagnosed Club Support Group

    Jill, glad you are doing well! Hopefully it will stay that way! Tamesis, thats interesting that you tested positive for celiac one way but not the other. The biopsy test is suppose to be much more accurate. Maybe celiac can be patchy and they didn't get the right spot? In any case I hope going...
  15. allieinwonder

    Undiagnosed Club Support Group

    Sunshine, I'm sorry you are feeling so bad! Hang in there! Tamesis, I have people I can call! I can even call my husband if I really needed to (he is still in Germany, and he has his cell on him). The seeing stars thing has always been a part of this. The worst episode was in a gas station. I...
  16. allieinwonder

    Undiagnosed Club Support Group

    That's actually pretty normal about the dog thing! My dog hates it too, but I still do it anyway, lol. I have no one to take her to here, its just me and the clippers! We have a vet on post but they don't offer that service. I actually don't have low blood pressure. My father has high blood...
  17. allieinwonder

    Undiagnosed Club Support Group

    Yeah, I love the furminators! I worked for PetSmart for three years actually, and quit because of this illness. I swore by furminators before I even started taking care of Kallie! They are amazing little tools. We her shedding is at its worse we use it at least once a week to keep the shedding...
  18. allieinwonder

    Undiagnosed Club Support Group

    Star, thats good about the appointment! I wouldn't get yourself too worked up about the complaints office...you have been trying and trying, and they just don't seem to listen! I wouldn't waste too many spoons on it. Cat, thanks for the advice! I've pretty much figured it is here to stay. It...
  19. allieinwonder

    Undiagnosed Club Support Group

    Phear, yeah, you will want to get off the meds way before your scope. It will most likely interfere. I would talk to your doctor about it so you guys are on the same track! Cat and Tamesis, my MIL did the same thing...actually she is still doing it lol. Her sister has IBS, and shows a lot of...
  20. allieinwonder

    Undiagnosed Club Support Group

    Tamesis, I felt the same way when we went from "its most likely crohns" to "you've tested positive for Lupus". I freaked out because you are right, Lupus can do a lot more damage to you over all. It can attack your kidneys, you heart, etc. I'm actually now in high risk of a heart attack and...
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