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  1. Paulah28

    Remicade Issues

    While I was in the hospital after operations they tried remicade and my pulse jumped nad heart rate dropped so they stopped immediately. About a month later I was back in the ICU and they decided to try it again after being pre medicated then I went into cardiac arrest. I do not mean to scare...
  2. Paulah28

    Please Help Need Advise

    Hey Guys....I have been trying and trying to find healthy diet that will not cause major pain. The problem is that I am VERY picky about what I like. Every where I look I am told that you need to try things you like and see how it makes you feel which I think is BS. Can any of you suggest...
  3. Paulah28

    Pentasa does it work?

    I hope this does not come across badly but my case is far from moderate. Last year I had 7 operations, several stays in the ICU and had an ostomy bag for 3 month. Entocort is working better than Pentasa or Asocol for me. It just goes to show that every persons reaction is different.
  4. Paulah28

    Pentasa does it work?

    They tried asacol for me al well and it did nothing so nowI am on Entocort and it seems to be doing well for me. I am not sure the strength but entocort along with Bentyl has really helped me.
  5. Paulah28

    Picc lines for Remicade

    When I was really sick they had to put a pik line in. After 2 months I asked that they take it out as there was no real need for it. It was nice going a couple of months without being pricked but it was just another thing I had to deal with....cleaning, taping it so it will not get caught on...
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