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  1. P

    Terminal ileum fistula surgery

    Okay great. Thanks JessPeper. 10 weeks post op would you say you feel a lot better and glad you had the surgery ? Like you feel yourself getting back to better than normal?
  2. P

    Terminal ileum fistula surgery

    Okay I have collected a lot of info. One more question for you all. Recovery? Any tips and tricks I need to know? Anything I need to expect while recovering? It's gonna be several weeks to heal I know that. Please share!?! Thanks guys.
  3. P

    Terminal ileum fistula surgery

    Well, was your surgery lap? Or open? And did you have your TI, valve, appendix and cecum removed? Because what you're saying I find hard to comprehend and not realistic. No offense. Could you explain ? And answer? Thanks.
  4. P

    Terminal ileum fistula surgery

    I see I see. So emergency surgery? Sorry to hear that. Yeah I am narrow but no obstruction. Just the fistula causing me UTI's. But, I am having the same surgery. But I will have my bladder stitched and a foley fir a few weeks. Now, when I eat a lot. It's slow digesting because of the narrowing...
  5. P

    Terminal ileum fistula surgery

    Hmmm I see. You had a open surgery to remove your TI, valve, appendix and cecum correct? That's it?
  6. P

    Terminal ileum fistula surgery

    Oooh please not the wings. Aghhhh! Lol. So when do you feel like you will be able to go back to eating bigger meals?
  7. P

    Terminal ileum fistula surgery

    Heyy thanks JessPeper. . Sooo when do you think or plan on eating normal again? Have you already started? Or? And could tell me your routine eating the last 9 weeks after surgery? Tips? Tricks? Soft high calorie foods? And do you plan on going back to eating how you did before you got sick?
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    Terminal ileum fistula surgery

    Okay thanks a lot for responding. I'm 2 months out. Right now my UTI is acting up and it's funny I can feel my fistula and where it's in my ileum I feel air go thru into my bladder almost like a kick. So I'm a big eater. I'm a bodybuilder and I've noticed where my ileum is narrow that I can't...
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    CROHNS. FISTULAS to BLADDER. AIR and SURGERY.

    Hey guys! Going to share a little of my story and what's going on. WOULD LOVE if there are others out there that have or are going through the same situation. I am 30 and have had Crohn's for 15 years.(2003) The first half of those years I was very ignorant of the disease and nutrition etc. I...
  10. P

    Terminal ileum fistula surgery

    Sooo I see. So your wound hasn't fully healed because you didn't go off your meds. I see. Thanks for all you comments and advice. Is there anything else you would suggest? Or may have left out?
  11. P

    Terminal ileum fistula surgery

    Thanks JessPeper You're 9 weeks out. Sooo how are you feeling overall? Soreness still? Pain still? D still? How is the scar? Fatigue? Any signs of recurrence?
  12. P

    Terminal ileum fistula surgery

    JessPeper I was going to ask how long ago was your surgery? And what are you eating right now through your recovery?
  13. P

    Terminal ileum fistula surgery

    Sooooo it sounds like to me that everyone feels better from having the surgery. Yes? That's good. I've got two months. Another question did anyone go on a low residue diet a week or so before surgery? Or a liquid diet a week before? I am planning on cleaning myself out like this a week before
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    Terminal ileum fistula surgery

    When did it reoccur? How long after surgery? And what meds you on?
  15. P

    Terminal ileum fistula surgery

    Also how does everyone feel after surgery? Did you go back on meds? Has the Crohn's reoccurred any??
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    Terminal ileum fistula surgery

    Did you have an epidural? And how was that? Worth it?
  17. P

    Terminal ileum fistula surgery

    A nasogastric tube In the nose to the stomach is what I meant.
  18. P

    Terminal ileum fistula surgery

    Hey man. Did they just stitch your sigmoid or resect?
  19. P

    Terminal ileum fistula surgery

    Okay great guys. Few more questions lol. Did any of you have to have a tube in the nose before, during or after surgery? And also I will need a foley where the urologist surgeon will stitch up my bladder. Probably two weeks. Anyone have to deal with that before?
  20. P

    Terminal ileum fistula surgery

    Okay great! Thanks you guys. Sooo would you all say that surgery was worth it? And do you all feel a lot better now? How long did you stay in the hospital after? Was it painful? Did any of you have and complications? If so what?
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