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Hey Cheeky...its funny you posted this. I was cooking tonight some Udon soup and the spice packet in it smelled like chemicals to me and I wasn't able to eat any of it. It left my poor husband bewildered. The only thing I could tolerate was a bowl of cereal with soy milk. Sounds like my good...

Wow! I've never heard of this stuff... Does it really work to put people in remission? I was reading on their website that it has a 79% success rate!

Yep I just went down to 2.5 yesterday and went to bed with a headache and woke up with it and have gone all day with it... see the pattern here? lol

http://www.kiss-textil.de/galactikaen.htm Now there is a toilet seat we should all get! :lol:

I am on 8 weeks. Yes, I do get tired after mine. I normally take the whole day off of work. Usually I go shopping after my infusions. Its like my little 8 week treat. But last time, I pushed myself too hard, and the lady behind the register at Target almost called 911 on me. (I almost...

hehe I really should. Do they just sell it at the drug store?

I'll give it a shot. I"ve been doing the bathroom dash since 5am this morning. My bumbum is so RAW!

Welcome. You are not crazy. Unfortunately I think most of us have been there and gone through similar things. This disease is a life wrecker. Socially, professionally and even personally in our own homes.

I'm there too. I'm so pissed off right now at how much weight I am putting on and my mood swings. I' made another thread earlier telling the whole story. :ymad:

Ok I can tell 100% that I'm about to flare again. I went down to .5 pred again 3 days ago, this is my 3rd attempt at trying to taper off 10mg. I even had to go back up to 15mg the last time. I've been on pred since early Dec. Obviously I need to get off pred. Now. Does it make sense, to...

No way would I try it again if you had cardiac arrest, pre-med'd or not! I think Humira may be your best bet. Holy gosh.

YEP. Sure enough. Usually when I am on low dosages though. Like NOW. I've put myself back on liquids for the most part though. I have to control this beast. I'm putting on weight.

I also think you need a second opinion. Perhaps you should try seeing another DR. Is your GI guy/gal a Crohns specialist?

Hmmm thanks Dan. I'm going to get through the day and see how it is tomorrow. If its still nagging, I'll know its something "not temporary" and schedule something with my DR. I mean if its an abscess it won't come out and rupture in one day right?

Ok folks... Still trying to taper off pred here and I'm on my 2nd day down to .5 (my 3rd attempt mind you...) And I have this new pain in my lower left side. I woke up with it and it's not getting better after going to the rest room 2x. If it was on my right side I'd say it kinda felt like...

Yes, I have had this Really bad before. Pred does it to me. I've soaked my sheets through and had to sleep on a towel some nights. It should pass in time. :)

Well, here I am just a few weeks after my last remicade infusion...I've been on Pred since Dec, and I went down to 5mg last week and I'm going into full flare again. I can tell because the past 3 nights I've passed out at 9pm, dead tired. And I've been feeling dizzy and weak again going on...

Pred works for me as well. I love it on about 30mgs. I have so much energy! But for me, when I'm at 10 (which I'm at now) I'm sleepy and hungry. =P LOL

Thanks Dan! Krom- Yes! I know what you mean, I got a cold on Monday, saw the doctor yesterday because my throat (the front part not inside) was hurting. Turned out to be a tonsil/node that was huge! Anyways yah, I'm sitting at my desk "cough cough cough" "snot snot snot" ! I hate having a...

Just checking in with everyone! How are y'all doing? I'm still on my pred taper, I'm down to 10mg now though. I'm fat as a cow but no stomach pain to complain of. Hubby and I are house hunting, pretty exciting and I cannot wait for spring! :)