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Hi all! Like all of you, I am going through the gamut of tests, and still no diagnosis. The only real thing they have found so far is that I am severely vit d deficient. Today a new symptom popped up. I have such bad pain in my ankle, every time I stand on it it wants to give out on me. And even...

Pops, you spell just like my hubby lol so I understand completely what you are saying! Your wife is very lucky to have you. Sounds like you keep her quite entertained! I had a really bad night, spent most of it in the bathroom, but the worst part is when it Carries over to my work day. Its very...

Is that a part of crohns?

They told me that I have constipation with overflow D. I am skeptical of that. I spend WAY too much time in the bathroom to be constipated. There is no way there is anything not getting out!

Are the symptoms any different?

I do have pain meds (vicadin) but I cant take them during the day because they put me to sleep. I may be taking one tonight though. It feels like someone has lit a fire inside me. I guess I am a little calmer, pops. Things were a little better at work today, so that has eased a bit of the...

Thanks everyone for all the good advice and support. My husband is great to me during all this, but he really doesnt understand, and I try to keep my pain to myself because he feels so bad that he cant make it go away. The one time that I did allow him to take me to the er they did nothing for...

David, no I havent even been outside of wisconsin in 3 years. And should I be having all this bloodwork repeated? It seems like it has been dismissed since everything was ok. Adam, they havent said anything about the inflamation in the ileum, really. They mentioned doing a capsule endoscopy but...

Ok, looking back at all my results, I dont find a result for folate. Could it be called something else? My hemoglobin was 15.3 and my b12 was 426. Other than the vit d they called all the other results "normal". But in looking back I see at least 2 that dont fall in the range. For example, my...

I am currently on 50000 iu of vit d 2x's/week as well as 3000iu daily of over the counter vit d. They wont retest me for 6 months. I do have a list of all the blood tests that were run on my online thingthat my drs office gives us. Are there any certain tests I should make sure they ran, or any...

Yes, all my blood work except for vitamin d has come back normal. Ive had so much blood work I dont even know what all I have had. I know b12 came back normal.

I have had the colonoscopy, biopsies all normal, but couldnt get into ileum due to inflamation.i didnt know an mri could be used for this. What does that look at? Nobody has mentioned mri to me yet. a friend has recommended gi associates to me, thats where he goes. I might look into that...

Do you also have crohns? Are the two related?

catherine, I cant believe I have constipation with all the time I spend in the bathroom. There is no way there is anything left in there!! They told me to do a water enema for two days. Which I absolutely refuse to do, for 2 reasons. One, I spend enough time in the bathroom, I dont want to do...

I agree, I am thinking a new gi is in order as well. I did get the results of my ultrasound and they said I have fatty liver, but that it isnt the cause of my problems. I figured I wouldnt get any answer from this test either. I was also supposed to get a capsule endoscopy, but they had to check...

Im sure I will get a copy of the report in a few days. Its just the waiting makes me nuts. Is there a certain type of pain with crohn's, or is it different for everyone?

Had an abdominal ultrasound today and I happened to get a look at some of the liver pictures. A couple of them showed some blue, red, yellow and green spots. Any idea what those mean? I also saw like a black oval shape...

I will definitely be spending some time getting to know the undiagnosed members here! Thanks for the help!

They said all the biopsies were "normal", whatever that means. Pretty much everything I have had comes out normal. Im tired of being looked at like I am crazy!

I am really glad to have found you guys, it feels so good to know others have gone t hg rough the same things I am going through. Yes, david, they tested my b12 also. It was at 426. From what I can tell that is about midway in the normal range. Is that right? I was reading in your newbie section...