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I dont know if that specific genetic testing was performed but I will ask at her next appointment. I do know some type of genetic testing was performed. Thank you for the information!!!

Dance Mom- She did have a complete workup while admitted at Nationwide byban Immunologist. Fortunately it all came back good.

Pilgrim- we had not heard of it either. We were told there are only approximately 17 people who have dealt with this.

Mr Chicken- she has been at Nationwide Children's Hospital in Columbus. She is followed by the chief of staff of the GI and Rheumatology clinic.

Breanna has had a VERY ROUGH year thus far. She has been admitted 4 times this year and most recently spent 22 days in a hospital 2 1/2 hours from home. She has battled a severe case of Remicade induced psoriasis that became seriously infected and a nightmare to get rid of. She was started on...

We have noticed over the last 10 days or so Breanna was spending a little more time in the bathroom than she had been since starting her Remicade Infusions, her color wasn't normal- almost looked pale/grayish, and she was napping more frequently and not as active. I was worried we may be coming...

Stephyjane- Breanna had been battling allergies and had just started allergy shots in November of last year but she had reactions to them so they discontinued those and just kept her on Zyrtec. Besides that she was pretty healthy until around February we noticed she was losing alot of weight but...

Welcome aboard Stephyjane and I'm so sorry to hear about your daughter! Our daughter was just shy of her 10th birthday (May 2012) when we recieved the diagnosis of Crohns. She had lost 22 pounds since the beginning of the year and had NONSTOP diarrhea every day with belly pain and EXTREMELY...

I'm so sorry to hear you all are going through some very difficult times!! I hope what I'm about to say will relieve your fears! :-) Our daughter, Breanna, is 10 years old and was just diagnosed in Feb this year. She started on Methotrexate, Imuran and Nexium. She failed on this treatment and...

Okay Crohns family! :ylol: Update on Breanna is that we were discharged Saturday night and received call Monday that we have no other choice at this time, clinically she isnt responding to any of the treatment, but to put her on Remicade. Doc wanted her started immediately therefore here we are...

We are not at U of M :-( We are at St Vincent Mercy Childrens Hospital in Toledo Ohio. Wish I was at U of M to help support Mary and Rowan though! The docs exact words (well not word for word lol) today was we are leaning closer to Remicade but since we just started out on the current treatment...

I'm so sorry I havent updated! Been a little crazy! Still inpatient, obviously. They bolused her with 60mg Prednisone yesterday and she had total of 5 diarrhea episodes yesterday. They gave her 40mg Prednsione today IV and she had 4 episodes total of diarrhea so getting there hopefully. The plan...

Breanna had her weekly lab draw this morning and an hour later my cell rang with a call from her GI doc. Her sed rate was is in the 60's, CRP at 3.1, all iron levels showing anemic still and new issue of her platelet count being elevated. SO guess where we are? YUP Admitted to the childrens...

Clash- Thank you for the response! I am SO glad to hear your son is doing better with the Remicade. I am honestly anxiously awaiting for her to start the treatment mainly so she feels better and can enjoy the rest of her summer! Thank you again!

We had Breanna's follow up appointment today. He said that Breanna isn't responding to the Prednisone, which isnt normal. The labs are showing no improvement and she has lost weight again. He is going to give her 1 more week on our current medication regimen and retest her labs on Thursday. It...

Well I dont know what to think about her MRE results! The nurse called this evening and said the MRE showed no new disease but does show there is Crohns present in small bowel as well which was what the GI doc assumed due to her Colonoscopy results already. I asked if she recieved the lab...

This disease just makes me want to SCREAM!! Breanna's labs are back and don't get me wrong I do understand it will take time but I was PRAYING that a month's time on the medicines would show some improvement, which is has not!! Her HGB is down again to 10.6, HCT to 32.6, MCV to 76.2, MCH to...

DustyKat- We are still waiting on results of the MRE. I left a message with the office nurse so hoping to hear something today. We havent seen much of an improvement at all with the Prednisone increase! :-( Amazingly enough she lost a few more pounds again and just seems SO TIRED! She is...

AZMOM- Breanna is 9 years old and thank you! We are certainly tryig to! my little penguin- They have been drawing labs weekly because of her critical anemia issue's at this time. Breanna has also been on 30mg Prednisone for the past 2 1/2 weeks until yesterday when they increased it. Thank you...

Poor Breanna isn't having as good of a response as we hoped for on the medications! :thumbdown: She continues with the abdomen pain and diarrhea with occasssional urgency. The GI doc called today and increased her Prednisone to 40mg and keeping her Imuran at 100mg at this point. He ordered...