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Crohn's Disease Forum

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  1. T

    Newbie needs help.

    Hey, The trial will last as long as it helps I think, they're giving me the next dose in a months time, which will be injection and infusion. I think it can be given for up to four years on the trial and by then it should hopefully by licensed anyway so will be available for general use. Here's...
  2. T

    Newbie needs help.

    Hey everyone, thought I'd give you an update. Had my scope last week, they've said the terminal ilium is worst affected, ulcerated and inflamed. Though it's not as bad as it was when I was first diagnosed which is interesting because my symptoms are as bad as they were. Going to have the second...
  3. T

    Newbie needs help.

    Hey, I will request this blood test next time I see my doctor. I've just had the first part of my trial drug, ustekinumab. I had it via infusion on Thursday and I think it went ok though I don't know yet whether I've had drug or placebo. I didn't have a reaction and it wasn't too bead an...
  4. T

    Newbie needs help.

    Wow guys! Thanks for all the replies it's really lovely to be part of such a supportive community. Yes, none of the drugs have worked for the pain at all. I felt a little better after my first dose of prednisolone, just less tired, a little more spring in my step etc. But was back to being...
  5. T

    Newbie needs help.

    Hi everyone, just joined this forum and I'm pleased to meet you all, I think it helps to talk to people who are dealing with the same sorts of things as you, obviously you'd never want your friends or family to have crohns but because they don't I think it's often very difficult for people to...
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