Thank you so much for responding. After reading more about it. I wondered also. This is new so there's a lot to learn. How would they test for systemic? How would it be treated? Is there a difference in mastocytic entercolitis and just mastocytic colitis or is it the same thing? Thank you.
Hi! My daughter (19) was just diagnosed with mastocytic colitis. She has had stomach pain and d for about 5 years. She also tires easily. She also has had chronic hives since she was about 12. Could ME have anything to do with the hives?