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Crohn's Disease Forum

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  1. B

    Rectum removal

    You can private msg me anytime, I'm happy to help with any info you want to know. It's a big surgery it's natural to be scared. Ive had crohns for nearly 20 yrs and im only 27, I still get scared sometimes. Stay positive :)
  2. B

    Rectum removal

    Yeah the unknown is very scary, I didn't research too much before my surgery because I knew i'd psych myself out. With my ileostomy I didnt have a choice as I was told I wasn't gonna live long and it literally saved my life. Just make sure your sent home with adequate pain pills. I was on...
  3. B

    Rectum removal

    Hi Rachel Just to respond, I had my surgery through my stomach not keyhole. My Dr went through my previous scar of my ileostomy which was about 10 cm big. I now have a much larger scar because they need to get into the stomach and move things around. I had 35 staples after the surgery. As for...
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    Rectum removal

    Hi Rachel Just thought id add my 2 cents on your questions. I'm 4 weeks post op with a complete proctectomy. I've had crohns for nearly 20 yrs diagnosed at 8. Ileostomy 4 yrs ago. I decided to have the proctecomy as my rectum was diseased and i ran the risk of cancer. I'm happy I had the...
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