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I do not yet know how to utilize this forum, so I hope I am in reply to all that responded above. My daughter was diagnosed with Crohn's, and after all treatments proving to be refractory (not of much help,) she developed the secondary, much more severe diagnosis of Wegner's granulomatosis. I do...

I am brand new to this site, but was alerted to your question via a daily google search that I initiated several years ago after my daughter's condition progressed from simple refractory Crohn's to the addition of an additional condition described as one of several autoimmune vasculitis...