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Aw I know how awful it can be. I had two rvf caused by a combination of Crohn's and child birth. Symptoms didn't really start till after my birth, so I think they just like to use the crohns as an excuse so I don't complain. Never had problems before hand, and had crohns 20 yrs. probably a...

hi Natasha. Well I had the gracillis flap op last June and last week had my stoma reversed. It's been a long hard few months. Hated the stoma. But so far everything is back to working normal and no leaking. I feel like a new woman. Fingers crossed it stays like this as it makes it all worth...

Hi flarkie hope you are doing ok. I think if you are suffering so badly then go for it. It can't be any worse, and if there is a chance it helps it can only be a good thing. X

Thank you fingers crossed its worked x

They said everything so far looks like its healed but they won't know how successful until the get rid of my stoma and I start going to the loo normally. Obviously that will tell if the fistula track has been repaired. Not sure how much you ve read about the gracilis flap repair, but they...

Hi mrs w. I m going to see my surgeons next week again about going back in for a stoma reversal, until I have this done I won't know how it has gone. Like you this was a last resort, I had surgery last year and the same as you it made things worse. Are you in the uk? I had my surgery done in...

I m using the drain able bags, as with my crohns I have quite watery output. Just find them easier then just change the bag once a day. When do u think u ll be having ur reversal? Pls let me know how u get on. I should be getting mine in sept, seeing surgeons again in a couple weeks to discuss...

Well am six weeks post op and feeling great. Don't get me wrong i m not sure i d like to have a stoma forever as mine is being reversed - but if I do it's not the end of the world. To be honest I don't think I had enough or any support from the stoma nurse prior to surgery. This is maybe why I...

Aw Marcus I really hope you get some relief from all this pain. Crohns is a horrible illness indeed. Please keep me posted on what you decide to do about everything. Sending some healing power right back at ya! X

Meant to say a temp stoma for three months not three years x

Hi I ve had crohns for twenty years and they think it's started with this which has caused s fistula to form between my anus and vagina. They ve used the gracilis muscle to heal up the fistula hopefully. And I have a temporary stoma for three years. It's been awful but I finally feel I may be...

Hi flarkie. Had the op three weeks ago and am feeling great. The hardest part for me was adjusting to the stoma, even tho it's being reversed in a couple months. Also after the op I had to stay in bed for five days. It was not the nicest of hospitals so this was also not so great. But pain wise...

Rye message me if u want to ask me anything. X

Well that's me nearly two weeks post op and to be honest as my stoma is starting to settle it does get easier. I still have moments when I think about it but not so bad. I can understand why someone who is in a lot of pain would fine it a god send. You basically can forget about it all day long...

Is that only a month or do after your surgery timbo? Makes me feel better hearing this.

Thank u I guess I m just freaking out a little with the stoma and felt very anxious after all the drugs I ve had. Feels like I mite be starting to feel abit more human tonight. Just such a huge change even tho only temp. Pls tell me I ll feel better in a day or so x

Just had colostomy 2 days ago only temp but struggling mentally with it all. Will it get better pls help!

Hi I have one diagnosed in 2011, having surgery in a couple weeks to try repair with some muscle from my leg.

I have had crohns for 18 years, and about 2008 I started with what I thought may be the symptoms of a fistula. Although nothing seemed to drain really from it, I suffered a swelling which would subside, flu like feelings every few weeks or so. After being fobbed off by various dr's I fell...

I ve been told last week I m to have a gracilis flap repair surgery for a rvf I ve suffered with since 2008. Has anyone had this op? Any advice on how bad it is? How is the post op recovery as I have a toddler to look after? Having temp stoma for 3 months too.