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Crohn's Disease Forum

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  1. J

    Ldn love love love

    Kev- Very good info. Thank you for sharing that. I have a pretty good pharmacist, but have never asked him about this. I guess I had better. He only makes me 30 day supplies and I have had no problems yet. But this is great to know. Thanks again. :)
  2. J

    Ldn love love love

    Heyjune. So glad to hear your story!!! That is great that you are doing better. I too HATE the prednisone. as unnecessary as it is sometimes.... it can be killer. No guts no glory- I started on a lower dose, you can always move up if you have to. the higher does will increase the odds that you...
  3. J

    Ldn love love love

    It took me about two weeks.. and the worst part was all the sleepless nights at first. I would even take some tylenol pm or magnesium some nights. I wouldn't sleep but I would have so much energy in the am. it was weird. Good luck. I hope it helps him. :)
  4. J

    Ldn love love love

    BelllaB I'm sorry to hear its not working so well for you. I am off all other medication. But I should say, that my crohns is not the worst case ever. I always heard others stories and mine was never that bad. Just lots of tummy pain, and nausea, and blood in my stools. I do still have cronic...
  5. J

    Ldn love love love

    I just wanted to post my love for LDN. I have tried many medications for my crohn's. I eventually landed in the chair for remicade.... I have to say that I wasn't happy about this rat poison in my blood. I had a total of 7 infusions. and with each one I felt worse and worse. I eventually landed...
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