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Hi PatMac and welcome! Really interested to hear your story. My 12 year old girl was diagnosed in August and was put on modulen, pentasa and aza. I felt that I wasn't given any choice about the aza and the side effects worry me. Did your consultant object when you asked to stop taking it? Love...

Hi -my daughter who is 12 started on 25mg and then doubled to 50mg (she weighs about 38kg ). The consultant wanted to see her in 5 weeks for a blood test but today my gp said we shouldn't wait that long and will do one in 2 weeks. We doubled the dose a week ago. I'm afraid I don't know anything...

Thanks all so much! I do see the logic of trying to reduce the inflammation quickly and I def want to avoid scarring. Another thing I am only just beginning to read about is strictures and surgery. My daughter had an MRI scan on Monday and I'll have to wait for the results but I guess that would...

Hi -My 12 year old daughter was diagnosed with crohns during the summer holidays. Initially it felt really positive to get a diagnosis and she coped really well on modulen (no fussing, drinking 2 litres a day etc). However last week was far tougher -she went back to school and found it difficult...