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Crohn's Disease Forum

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  1. J

    Always bloated & embarassed

    I've tried almost every probiotic under the sun, cut out gluten & dairy (I'm pretty much 100% Paleo now, with a little bit of white rice a day), and the bloating continues. Anyone know how SIBO is best diagnosed? I read this: "Hydrogen breath testing with lactulose may be able to diagnose...
  2. J

    My story and how remicade helped.

    Great to hear your story Rebecca. Count me as one of those considering Remicade ~ Humira. Based on crowdsourced patient data at curetogether, Low dose naltrexone would appear to be the most effective treatment for crohns but it didn't help my gut inflammation at all. I was diagnosed with...
  3. J

    Always bloated & embarassed

    Hi David, I've heard a lot about this. I recall there was a study showing peppermint oil might be effective for this. Are there any other promising treatments?
  4. J

    Camel's milk

    Thanks acheallova, that was really helpful and timely, since I'm planning on seeing my first crohns/UC specialist in a few weeks.
  5. J

    Undiagnosed Club Support Group

    One more to the club! I've had c-dominant IBD for years, have bloating that gets about 10x worse at night. Integrative approaches for gut motility never helped. Finally put 2 & 2 together and figured it's an inflammatory pattern. Trying to see a UC/crohn's specialist soon. Thanks to...
  6. J

    CNN - fecal transplant for c. diff

    Clinical trials are being done for FT on UC as well: http://clinicaltrials.gov/ct2/results?term=fecal+transplant&Search=Search
  7. J

    Camel's milk

    Based on my time on the Healing With Camel's Milk fb group, some manufacturers do exhaustive testing for pathogens. Does take some research, but definitely feasible to limit the risks.
  8. J

    Camel's milk

    Ultimately that won't be what holds camel's milk back. After all, there are already small pilot studies being done (like the one done on 8 children with severe allergies). Additionally, there was a double-blind study done on the SCD diet by umass (as quoted above) for IBS. Thirdly, SCD...
  9. J

    Camel's milk

    Regarding Paleo: I am on strict paleo and I wanna pose the theory that the effectiveness for crohn's might depend on the severity of leaky gut. There are certain derivatives of paleo specific to autoimmune disease, incl. (but not limited to) Terry Wahl's, Robb Wolf's, SCD and GAPS diet. All...
  10. J

    Camel's milk

    There are no studies yet on Crohn's, despite what Dr. Yagil would claim (I haven't seen anything besides his quote: ”Personal observations (RY) over the past 5 years suggest that autoimmune diseases are controlled or even healed by drinking camel milk”. His reasoning for it working on crohn's...
  11. J

    Camel's milk

    There is a Healing With Camel's Milk Facebook group, and they have a directory of providers selling it in the U.S.
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