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Crohn's Disease Forum

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  1. J

    Completely overwhelmed by it all

    All I can say is welcome to the world of Crohn's...I was diagnosed clinically back in 1994 due to a peri-rectal abscess which has turned into a fistula and my now my constant companion...IBS symptoms along with other unexplained ailments in my 20's....I did Remicade for over 10 years which was...
  2. J

    Wait for reversal??

    Hi KazT....thank you for your reply, I have to say, I had to look up proctectomy, and I work in the medical field, LOL, sounds like you've been thru the ringer my friend........I don't mind not having the period thing, I'm not even experiencing the menopausal thing either....HOORAY!
  3. J

    Wait for reversal??

    Thanks Susan for your reply, yes the 80's do, remember it well, I've always had long hair but when it started falling out everywhere, called my sister the hair dresser, she was more than happy to cut it for me, I actually love it now, but it's still coming out, not at the rate it was.... Thanks...
  4. J

    Wait for reversal??

    Hello Everyone, had emergency surgery 5/30/12, perforation, bowel resection and ileostomy....the bag was not my favorite thing, leakage, constant emptying, etc...although I could eat, I continued to lose weight because everything dumped into the bag so fast, that was a problem while being out...
  5. J

    Anything to help with the pain with abscesses?

    Hello.....I feel your pain, been dealing with perirectal fistual since 1994; it has abscessed and been opening many times, lost count. Judith is right with regards to asking for pain meds, it's an art form, gently let them know that the OTC's are not helping right now and if there is anything...
  6. J

    Inverted stoma - problems with leakage onto surround skin

    Perse.... Another thing, you mentioned using powder, if anything, try cornstarch, it's natural, no additives and therefore should not sting, just be sure to remove excess so your bags adhesive wont be compromised. I'm not sure how it works in the UK, but the ostomy company I used would ship...
  7. J

    Inverted stoma - problems with leakage onto surround skin

    Hi Perse....I had leakage issues as well due to my tummy roll; had ileostomy back in May, emergency surgery due to perforation; the nurse gave me the convex bags that I sized and cut myself; I had horrible skin irritation as well due to the leakage because the bag content is very acidic; once...
  8. J

    Hello- Newly Diagnosed, Surgery Tomorrow

    Hello, New to Forum, just a quick note, status post bowel resection 5/30/12 resulting in an ileostomy for almost 4 months; status post reversal 9/11/12, YEAH!!!!!!!!!! Diagnosed with IBS in my 20's; perirectal abscess revealed Crohn's in my 30's; Pentasa, Asacol, Prednisone multiple years ...
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