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Crohn's Disease Forum

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  1. Robrich

    Is Burkina Faso the new destination for FMT

    Early onset could be explained in that the micro biome is passed from the mother and or other pre natal environmental factors altered it.
  2. Robrich

    Questions about entocort

    I took entocort for about 2years with no problems. Took calcium too but you need to take magnesium and vit d with calcium or it goes in the arteries instead of the bones. Otherwise go for food based calcium like whole eggs, yogurt, cheese, kale, broccoli, wild salmon, sardines and others
  3. Robrich

    Travelling long haul flight with Crohns

    Planes are bad enough but with active Crohns it sounds miserable. That is a very long flight. You can't use the WC when seat belt signs are on. Bring a change of clothes and wear adult diapers just in case You can probably save your place in line at immigration, ask the person behind you and...
  4. Robrich

    Please i need urgent advice

    It concerned me when you said it hurt to press on your stomach. Fever or high pulse rate, lightheaded ness, might be as much of a concern as vomiting. I am not a doctor and you need a dr. To check you over.
  5. Robrich

    Please i need urgent advice

    That won't help your problem. You may have a blockage. That can be life threatening. Best get to An ER or some kind of medical facility very quickly.
  6. Robrich

    Looking for any thoughts

    It's hard to say Andy. interestingly I have been having similar pains and had an unltrasound today. No results yet. IN my case I am not having any Crohns related symptoms and the doc thinks it is muscular skeletal. I am not sure. It could be so many things. Appendicitis, gall bladder... BTW...
  7. Robrich

    In hospital for a month now...help!

    So sorry to hear about your daughter. The disease can be very aggressive in young people. I spent over a month in the hospital when I was DXd at 15. All we had then was cortisone and it took 5 weeks over 2 stays to get it under control. But after that it was never as bad. What I have learned...
  8. Robrich

    Entyvio (Vedolizumab) Support Group

    Good idea Thanks kimmidwife
  9. Robrich

    Entyvio (Vedolizumab) Support Group

    Kimmidwife I am having similar pain issues as your daughter. Started 4days ago. It's n my right side from just below the rbcage and when it's bad up n my shoulder. At first I thought t was Crohns but now I think it's musculoskeletal as I have no other Crohns symptoms Spoke to my doc today and...
  10. Robrich

    Please help with medication!

    So anyone diagnosed with cd under 20 should get biologics right away? Stelara is not approved for Crohns I don't believe
  11. Robrich

    Please help with medication!

    Hi Lady O So you went bottom up? 5asa drugs rarely work for Crohns but for milder cases it's worth a try? Meanwhile you worked on your diet and still have the biologics in your Arsenal in case things go south on you. Are you happy with how your treatment plan worked?
  12. Robrich

    Please help with medication!

    "If you start with top down you have the choice of 3 anti tnf blockers then there are other biologics that aren't tnf that you can move to so basically 6 or 7 biologics." That is not necessarily the case. If you fail a tnf blocker other than for antibodies you will likely fail the other anti...
  13. Robrich

    Newbie from So. Cal

    Thanks always good to know. My doc Ronald Siegel at UCLA retired a few years ago. I went through 3other docs there before ending up with Christina Ha in Westwood UCLA. She is a Crohns specialist and she has been awesome for me.
  14. Robrich

    My Treatment Options - Advice Please!

    That's what I also thought... that it was overkill. So you agree, that I should seek out a second opinion? I think we all have to have a meeting of the minds with our doc. If they don't want to listen to your concerns and think they have the only answer it's time to seek out other opinions...
  15. Robrich

    African travel

    Same for me with the pred but now I am stuck on 10 mg. You might consider taking some along just in case things go south on you in the middle of nowhere.
  16. Robrich

    Newbie from So. Cal

    Welcome and good luck with the MTX. I did the injections for almost a year now I am on the oral. Don't be dismayed if you get some nausea and fatigue in the next few days. I Did for a month or so but after that no problem. Zofran helps, cannabis is better. I don't like talking about it either...
  17. Robrich

    African travel

    Maybe he can tone it down and not try to do too much. No fun if you are not feeling well. I take Ativan and norcos on those long flights. Would you consider taking prednisone, not a bad idea anyway if you are still symptomatic . The way I see it at our age quality of life is more important...
  18. Robrich

    African travel

    I don't know what to tell you. I am 66 and a trip like that is somewhat daunting, but if me I would do whatever to try and make it. It's a special experience. I would keep it to the most comfortable places and not try to do too much. Bring lots of Imodium and some norcos if you can and don't...
  19. Robrich

    African travel

    Would be great if you could go BUT first how would you deal with humira it doesn't travel well?
  20. Robrich

    Week 11 entyvio

    Try adding Imuran or MTX maybe some prednisone. Combo therapies are very effective.
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