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Crohn's Disease Forum

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  1. ajalily1

    And now...lupus

    Are you on remicade? I was told that sometimes being in humira can cause an induced lupus and then it goes away once you stop the medication. I'm not sure if you fall under this category but it might be worth doing some research on.
  2. ajalily1

    Long Tough Road!

    Long tough road is an understatement. I hope you have a good support system of friends and family for the tough times to help you through. Best wishes to you, and I hope you feel better soon!
  3. ajalily1

    Bad experience with doctor - need advice

    This is exactly what happened to me when I first was trying go get on humira. Just for future reference if your sons GI works in a clinic with other dr.s, specialists ,ECt...there is no harm in calling and asking for a patient advocate. Most clinics have them depending on how big they are, I...
  4. ajalily1

    Just diagnosed with ileitis had symptoms for years please help!

    Well you've come to the right place my friend. So sorry to hear about you diagnosis. Put your helmet on as its going to be a bumpy ride. The research shows that people with Crohn's disease also experience joint paint, eye inflammation, and skin rashes, and other ailments as well. I have had...
  5. ajalily1

    Very New Mom to Teen Daughter with Crohn's

    Welcome,welcome,welcome. You have found a wonderful supportive place to bounce off thoughts and feelings, and most importantly to get some support from others that are going through this. I am very sorry for this news you have received. It must be very scary to have your daughter be so sick...
  6. ajalily1

    Different pain medication?

    Hi Kayleigh, I too have crohns and experience arthritis and pain associated with my CD. I am on humira, but I also see a pain specialist who prescribes me hydro condone, and duladid (which I only use for bad flares). I know that pain killers are not for everyone. But I take 2 Vicodin a day...
  7. ajalily1

    Life isn't good.

    I can totally relate to everything you said. I am in the same boat. It can definitly get very depressing. Especially when you feel like no one understands what you are going through. I talk to my mom, and husband about the pain, and how I'm feeling so awful 95% of everyday. But unless you...
  8. ajalily1

    Pain and crohns disease

    Hi! Thanks for responding... I have been on a prednisone taper. I have B12 injections once a month. The Pain is at my surgical site. And its constantly there. Mostly dull aching pain. But when I am flaring its like someone is stabing me in the stomach. I also have crohns in my mouth. So...
  9. ajalily1

    Pain and crohns disease

    Well Hi everyone! I am new here. Dx in 2005 with Crohns. Had surgery in 2006 after mulitple hospilitzations. Have been in remission up until a year ago. Now I'm back in the medical hell of this disease and I am feeling pretty depressed about it. Trying to stay positive but It is difficult...
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