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Hey! Been where you are and I know its scary, I was underweight and losing 1lb every 2 days. The fact you're not digesting your food properly means its just traveling through you and not doing its job, feeding you! Try and focus on trying to get nutrients inside you and improving your health...

Yeah I've been using the seals but was unaware how you can mould them right up against your stoma. Just thought they were extra protection against leakage, seems so obvious now! Not sure my nurse is aware either...... So glad I joined the forum! You're doing good things, thanks again!

Thanks for the advice, its all helped. Really good to hear from people who actually know! Feeling better about this now, was really worried the Crohns was back with avengeance. Probably cutting my hole too small, trying to tread the fine line between too big and too small as i've had some skin...

Hi, I'm new to here and was wondering if anyone can give me some advice? I had a bowel resection 10 weeks ago resulting in a temporary ileostomy. Changed my bag after 5 days today and noticed some darkening of colour on my stoma. I'm pretty scared that this is the return of Crohn's already, but...

ah okay I get you, not heard of this approach before! I imagine they're doing this as you've been on a steady dosage of 40mg for such a long time. To get your body prepared for the lower dose. From what I know it sounds reasonable and most likely to give you a chance of success at a lower dose...

Hey Scaryman! For the whole of this year Prednisone was the only thing that made me feel anything like human, but in my experience the doctors don't like you to take it for too long. I was on 40mg a day for 6 weeks then a reducing dosage by 5mg a week. When down to 5mg then reduced by 1mg a...

I stopped taking Pentasa off my own back in 2010, much to the disgust of my Specialist. We argued about the benefits (or lack thereof) for about 18 months. I was convinced they made no difference to me and am wary in general of taking any medication long-term. About 12 months ago I started with...