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I was right where you are - my son is now 19 and in his 2nd year of college, but when he was 8 years old, after my 3rd surgery, I was warned that I needed to go full boar on any drug I could find or I might not be around to see him graduate from high school. (My issue was short bowel syndrome...

Hi Jenlarubia, It sounds as if we've been down very similar routes with our Crohn's. I have had Crohn's for 30 years now (since I was 19), 4 bowel resections - no fistulas - and have been on every medication as it comes available. For some of us, one dr. described it as being in a subset...

Thanks so much for sharing your experience coming off of Tysabri. It's just been recent that I've heard there can be withdrawal symptoms, but nothing specific. I imagine it's different for everyone, but you're description of your depression is very similar to what I've been going through...

To Tiger09, I absolutely understand where you're coming from - it's a scary step to take, especially after completing the extensive paperwork. And it's expensive too. On the positive side though, I've had surprisingly few side effects compared to the other medication I've been on - which is...

Rockdawg and Crohnie2003, I'm so impressed with your courage, but so very worried for you being on Tysabri while PML positive. I'm being tested every 3 months now because my GI had his first patient turn up with a positive result and is now more concerned. It always seems like it can't...

Hi Vitapro, I only know what my Tysabri infusion nurse has told me, which comes with the disclaimer that I am their only Crohn's patient, the rest are MS. But I thought I caught a stomach bug and missed my regularly scheduled infusion (which had been pushed out 3 days anyway because of the...

Tysabri + Prednisone = Depression Revelation Hi All, It has occurred to me that, although I have been more depressed in the last 4 months on Tysabri (out of 9 so far) the stronger depression has come on since I've been on low dose Prednisone beginning in May. While Tysabri magically made the...

Thank you so much for everyone's kind words! I'm in touch with docs to see if they know of something to help. It's worrisome to ask though, because I'm afraid the answer is to get off of it, and it is helping with lesions. Darn side effects!

I'm new to this forum and so excited because I was looking for something specific to Tysabri. I have had fibrosing Crohn's since I was 19, almost 30 years now, and am anxious to save the last 6 feet of small intestine I have. As most on this site, I have tried every drug out and had a myriad...