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Have any of our kids been to camp oasis? Is it a good camp?

My 9 yo son has his 5th infusion tmro, doc is upping his dose. Hoping it will help with his symptoms!!!

Thank you so much for the insight!! I really appreciate the feedback. It's nice to know we are not alone on this journey!!

Our doc talked about moving his infusions to every 6 weeks. Abe is taking pepatem in addition to food. We are restricting his diet per the dr request..no soda, chocolate, acid based food, raw veg, fried foods, but have not seen great changes with it.

He is getting remicade every 8 weeks at this point.

We are in Illinois..the closest one is in Minnesota. Our GI doc is upping his remicade dose which scares me because he is only 54 pounds. He continues to check his stools for c-diff which comes back negative. His blood level is at 9, so he put him on an iron pill. I'm just very frustrated...

My 9 year old son was diagnosed in May with UC, then in October after a colonoscopy, they confirmed he had Crohn's. We have struggled with a variety of treatments, that have not had a great deal of success. He is currently on Remicade, Steroids, Zantac, Pepteman JR, and a cramping...