Search results

Sorry about your diagnosis but welcome to the forum! This is a great place to get info. I was diagnosed 30+ years ago and really wish I had a resource like this. I too am a person with alot of the same symptoms as you; we are not textbook cases. I am on 9mg Entocort currently with a flare...

The same thing has been happening to me. I have 3 fistulas with setons since Jan 2013 and they will bleed from time to time even though they are healing.

Dear Seaface, I'm so sorry to hear what you're going through. I had a J-Pouch procedure done in 1993 after having UC for 5+ years. I had toxic megacolon and spent a month in the hospital post surgery. For almost 20 years I was pretty symptom free. Initially I had to take immodium and had...

OMG@! I'm supposed to start Humira in a few weeks and now I'm really reconsidering. I have worked really hard to lose almost 100 pounds; some by design, some by Crohns. Either way I don't want to gain anything. Yes, let us know what your doctor says. And for the record, I do believe it's...

I have the same problem because of fistulas (3) and it is an awful, yellow fluid that has the worst smell I've ever smelled; it's indescribable. I too worry about having other people smell it if they get close. The baby wipes do help but only until the next leakage. I just started up on...

Elvie, thanks so much for responding! How long have you had your fistulas and have you had any previously? This is a first for me (I have 3) and I've had them since January. I have setons in place (ugh!) but when I went to my surgeon last week he said they weren't healing and that's when he...

Hi, my doctor's are pushing for me to start Humira due to recent fistulas that are not healing. They say it will help but I'll need to stay on it, etc... I'm really scared. Has anyone out there had fistulas that were helped by Humira? And how bad are the side effects, really?? Thanks!