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Good afternoon, everyone! Needed to vent a bit and thought I'd update as I'd not been on here in a while except to read and lurk on work breaks. We got into CHOP (thanks for the push on that MLP) and the doctor immediately said we can't rule out or diagnose anything until she has a pillcam...

Hi everyone! Hope you all had a nice holiday weekend with not too many tummy upsets (at least for those in the US). I did hear back - fairly quickly, actually from CHOP. She is scheduled to meet with two doctors there on Mon. June 24. Only one of the doctor's names is listed on the CHOP site...

Thank you! So I checked out those reviews and went on ratemds.com and found 11 more glowing reviews for Piccoli. I called CHOP, got Mandy registered and since I was specifically asking for him, she transferred me to his secretary. VERY sweet lady. She said he is no longer seeing new patients but...

Good morning, friends! I've finally got the go ahead from my husband to get Mandy to CHOP. Before I call and make the appointment I wanted to see if there's anything I should know, i.e. particular doctor I should request? I just spent a ton of time on their website. Quite impressive and I...

Thank you everyone! Well, scopes went well. The doctor said there was nothing that he could see visually that indicated Crohn's or Colitis. No signs of bleeding. But he also cautioned that we would know for sure until biopsies come back, which is another 7-10 days. Meanwhile she's still in pain...

Maree, good luck with the cleanse! I hope it kicks in for him soon. The last thing you want is to reschedule! My daughter is - and has always been - really thin, too. Be sure to let us know if you do make it in tomorrow! Christy

First off, thank you all for the overwhelming support and second, I apologize for disappearing. Between work and computer problems I was able to access via my iphone but it was too cumbersome to reply that way! Mandy has not improved but the good news is she goes tomorrow morning for her...

Catherine, your post got buried! Sorry I did not respond quicker. Interesting about the anemia/no ibs dx. I had no idea. It sounds like we've had quite similar backgrounds with our kids. Thank you for the information!! These docs are enough to drive us to the looney bin;)

That is a very good way to look at it DanceMom! And that is exactly the thing -- finding a doc that will put the pieces together. I already "fired" one of the Hopkins GI docs when he told me in January that 1- he found it hard to believe Mandy really did eat gluten-free, 2- there was no evidence...

Also - just as an aside here, the doc at Hopkins said she wanted to treat with antibiotics first and NOT scope because Mandy's CRP level was normal and sed rate was not high, which indicated to her no inflammation.....I know from a little bit of digging I've done that not everyone with IBD shows...

Crohn's Mom - she is starting to become depressed, not surprisingly. She's not feeling well enough to attend school (been out for 3 weeks now, fortunately the principal is amazing and is working with us), missing out on her favorite activity of theater and just missing being a teenage girl and...

Thank you, DanceMom! Now that you mentioned Neurontin I remember being on that myself when my IBS is bad. Her pain is so bad she cannot make it to school for even one hour. Something has GOT to be done. I guess I need to get my big mama bear pants on and start getting aggressive!

Thank you for the response!! She did have stool cultures, no bacteria found, but they felt antibiotic therapy could be warranted since this round started with a virus. No other imaging has been done. It was the nurse practitioner that said to take Tums. And responded that the antibiotics should...

Thanks for the welcome! My doc is pretty accessible via email so I emailed her this morning and asked if there is anything we can do for the pain. Tums is it. Which is doing nothing. SIGH...Aside from that I'm supposed to report to her next Tuesday at which point we'll decide if the antibiotic...

I'm so glad I found this forum! First of all, ALL of you are in my prayers for what you're dealing with. Would love to have your insight on my daughters situation. At 8, after a year of no growing and a lifetime of tummy troubles (constipation and constant stomach aches) she was found to be...