Search results

Wow. Thank you. That is a great explanation of the immune system, Kiny. Makes me want to read up on that more! Maybe we can optimize our son's treatment a bit more.

Ok, so here is a question I can't seem to get an answer for: When my son is beginning to come down with a cold, do I try to boost his immune system? In the past, and currently with all the family except C'b, we use products such as "Airborne" or extra vitamins during times of illness. But...

It's amazing that it has already been two months. Caleb is doing SO much better. He has had three doses of Remicade, and it seems that almost all symptoms are gone. I guess I've quit thinking about the future "possibilities", and am enjoying the current situation. His stomach pains are gone...

That was his first fecal cal test. Taken the morning before his first remicade infusion. Symptoms seem to be worsening…next infusion is on the 8th. Gonna look at some diet info to see if that will help also…

So, I guess my denial needs to be over. His Fecal Calprotectin level came back from the lab...ended up at 686 mcg/g. Seeing as the level should be less than 51, I can't be on the denial wagon anymore! Poor guy is being woken up at night with stomach aches...sure tears my heart out!

Well, today's visit went VERY well. We are at Mayo (in MN), and received such wonderful treatment. He was given a dose of Zyrtek prior to the Remicade, then they gave the med at a slowly increasing rate until it was done, starting at 3.2 ml/hr for 15 min, then 6.4 ml/hr for another 15 min, and...

Remi going in nicely, thank God! No adverse reactions, and Caleb is doing great! Still in denial about it being needed, thanks for the post about grief, DustyKat!

First remicade in 30 min. Nervous. And I have certainly been in denial about my denial. Funny how that works!

Thanks, everyone. Think I was having a bad day Friday! I think that this is just all surreal for me. Cb doesn't really seem that ill. He has been struggling with some sores on his butt (fistulas we now know), and some abscesses. That led to the colonoscopy and endoscopy, MRI etc. However he...

My son (11 yrs) was diagnosed with Crohn's 2 days ago. It's hard to even type that. It is a fistualizing type, and he begins Remicade treatment on Monday. (for some reason, I thought this would be easier to type...) Since then I've been busy researching my medical coverage, and trying to...