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well, apparently i need not have worried. The nurse practioner at Mott's came into the room and already seemed to have her mind made up that nothing was wrong with Lauryn. She sad the labs that said Crohn's were unreliable and she would never even order those (the IBD sgi prometheus).....she...

wow, thank you all for so much support! I got an appt at Mott's (UofM) tomorrow morning, can you believe it?! Devos wouldn't even schedule me yet! I will fill you all in after the appt. wish us luck!

Thank u all for your responses and support....i feel like im either on the edge of a breakdown or in 'lock ur feelings away and become mama bear' mode....sigh

Yes we are at devos also...at least i will get rheumy's thoughts in july....maybe he will even order some tests while we wait for GI..I hope anyway!

yup, i called and talked to the nurse (since the same rheumy sees me and my other two kids, i felt comfortable to call)...the nurse talked to the dr. and he is going to try and get her into the Peds GI sooner and also put us on his cancellation list, but they are all booked up. We are close to...

Thanks! The appt with Rheumy is July 24th (ish)...10 year old sister was dx with Celiac Disease in spring of 2008...Then Polyarticular Juvinile Arthritis/Enthesitis (SP)/Spondylitis in Sept. 2009....older brother dx with Juvenile Arthritis (dr. is thinking along the lines of Psoriatic Arthritis...

Long story, but my 7 year old daughter's pediatrician ordered some labs on behalf of a Peds Rheumatologist for an upcoming new patient appointment. The labs came back fine except for the "IBD sgi Prometheus" test, which came back "Pattern consistent with IBD: Crohns Disease". She has daily...