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  1. Crohn2357

    MAP at the 2023 UEG

    Have you seen the full paper? How many patients had the full dose, do you know? I’ll delve into it once I get the PubMed version. I wonder whether they tested for MAP before and after the vaccine, their testing method for map, their way of evaluating, and definition of Crohn’s disease activity...
  2. Crohn2357

    MAP at the 2023 UEG

    Thanks, could you share the pubmed version of the paper? I couldn’t open the link.
  3. Crohn2357

    MAP at the 2023 UEG

    I also stopped following the research. This is what I wrote about the vaccine a year ago: Before this, I had written about my thoughts on the antibiotic cocktail research about six years ago, in another Crohn’s forum; my nickname there was “xy123”...
  4. Crohn2357

    MAP at the 2023 UEG

    Do you have any info about the current state of both the “map vaccine” trial and the antibiotic cocktail research by redhill?
  5. Crohn2357

    Anti-MAP Therapy Support Group

    Any updates?
  6. Crohn2357

    Can You Eat Olives Without Any Issues? (POLL)

    Steam-cooking olives before eating may be another method to make them more digestible. They also should be chewed well.
  7. Crohn2357

    Antifungals and Crohn's

    About a decade ago I used a powerful systemic antifungal drug to treat steroid-induced oral candida infection. The drug helped my Crohn’s (intestines) as well. The positive effect was noticeable, and I have always found that interesting.
  8. Crohn2357

    Stelara is working

    I would continue with this conversation, but I don’t want to use Pangolin’s thread for it. I have some disagreements that I won’t delve into. Just a note: if you haven’t already, get him tested for MTHFR mutations. If it comes out homozygous positive, consider giving him methylfolate instead of...
  9. Crohn2357

    Stelara is working

    I started stelara a few months ago. I have also been using 6MP for years. Doesn’t MTX make him feel bad? It lowered my appetite, especially for red meat and animal fat; which was unusual for me. It also made me feel bad in general. I used injections, and folic acid the day after. Its effects...
  10. Crohn2357

    Stelara is working

    Glad to learn he’s still doing well. I hope he continues like this forever. I don’t know what product your child used, but I actually quite liked the taste of modulen, and see it the other way around. You make it ready the day before, and you have the whole day’s meal ready in liquid. Tastes...
  11. Crohn2357

    Stelara is working

    Is he still doing good? I wonder, can’t he be on total EEN for a long time (years), if it helps him with inflammation and nourishes his body?
  12. Crohn2357

    Modulen diet

    I wouldn’t speculate so. IIRC, @my little penguin has children with CD, she may give you another perspective.
  13. Crohn2357

    Modulen diet

    Hi, welcome to the forum. How did they diagnose his Crohn’s? If through colonoscopy (and other imaging devices), they should have handed you their results, and you may understand the severity of his disease by reading them. Ask also the doctors about it. I think they did a fantastic job by...
  14. Crohn2357

    Can You Eat Olives Without Any Issues? (POLL)

    Do you ever experience gut problems of any kind with olives, do you consider olives safe to eat? What kind of olives do you eat? How much and how often do you eat them? I have read about baked/roasted olives, I may try them to see if they are more tolerable with Crohn’s.
  15. Crohn2357

    First JAK Inhibitor Approved by FDA for Treatment of Crohn's

    This seems to be the most unsafe drug ever to get an approval for the treatment of CD. I wouldn’t consider using jak inhibitors unless I really had no other choice.
  16. Crohn2357

    Anti-MAP Therapy Support Group

    I think the current map vaccine trial with Crohn’s patients will prove the vaccine is ineffective in treating Crohn’s disease. I don’t expect any further trials with the vaccine after that. Rhb-104 antibiotic cocktail that was supposed to be “anti-map” also resulted in more or less the same...
  17. Crohn2357

    Anti-MAP Therapy Support Group

    From CMV’s FB Group: “Many members of this group have been with us for 7+ years through all of the fundraising, setbacks, fears, and tears, and sadly some members are no longer with us. For those that are, we are now only just over a month away from the end of the phase 1b and six months from...
  18. Crohn2357

    “Sorriso Pharmaceuticals is creating the first orally-delivered anti-inflammatory drug for patients with IBD”

    https://www.utahbusiness.com/sorriso-pharmaceuticals-is-creating-the-first-orally-delivered-anti-inflammatory-drug-for-patients-with-ibd/
  19. Crohn2357

    Anti-MAP Therapy Support Group

    Open AccessObituary Hermon-Taylor: M. paratuberculosis and Crohn’s Disease—The Book of Revelation According to John by Coad Thomas Dow McPherson Eye Research Institute, University of Wisconsin, 9431 WIMR, 1111 Highland Avenue, Madison, WI 53705, USA Pathogens 2021, 10(11), 1469...
  20. Crohn2357

    Anti-MAP Therapy Support Group

    MAP Specialists MAP Doctors and Research Centers Around the Globe E-mail Human Paratubetculosis Foundation. They will most likely help. Also use various Crohn’s Map Facebook groups.
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