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  1. nicumom

    Question about Fecal Calprotectin Counts

    No other food tests - well, our asthma/allergy guy did a food test - but said he had no allergies - and I honestly don't remember if it was the skin prick test or a blood test - or both - I should call them. We go there because my other son has asthma. Not this one. Yes, avoiding gluten helps...
  2. nicumom

    Question about Fecal Calprotectin Counts

    Both! He did the blood tests and 2 biopsies - one in 2013 and again in 2014. Interesting about the dismotility - another thing I had found online was called "peritonitis infection" and "meckels divertculum" It just saddens me so much that the #3 children's hospital can't figure this out...
  3. nicumom

    Question about Fecal Calprotectin Counts

    Guess I forgot to mention a few things - yes he did have an MRI, and over the Christmas holiday he swallowed a camera pill to take pictures of his stomach and areas where the endoscopy couldn't reach - all normal. Nobody has mentioned dismotility and I have no idea what that is. I will google...
  4. nicumom

    Question about Fecal Calprotectin Counts

    It would take forever to type out the history of our soon to be 13 year old. Lifelong issues with belly pain and wanting to go #2, ever since the potty training years. When he goes - it takes FOREVER. Year after year - doctors prescribed MIRALAX. He's been constipated - and also had...
  5. nicumom

    Our 11 year old had the endoscopy & colonoscopy today

    Sorry for typo - IBD is correct. As I mentioned - we're still dazed and confused - reading online about so many horrible things and children having some sort of bag on them that they need to change? And nutrition info, etc...it's overwhelming.
  6. nicumom

    School and Crohns?

    Any tips for how to talk with the school about having a child with Crohns, and for the times when the pain might suddenly come on? I can't imagine sitting there in class with some sort of pain like this - that comes and goes. I don't know what it feels like, the frequency or intensity - but I...
  7. nicumom

    Our 11 year old had the endoscopy & colonoscopy today

    So our 11 year old had the endo and colonoscopy today. The endo results were good, but the colonoscopy showed tiny white dots. They explained when he gets cold sores on the inside of his lips - that it's the same thing inside his intestines. Tiny ulcers. They said this was the classic look...
  8. nicumom

    New here, and looking for guidance please

    Thank you JMRogers for the welcome. What a friendly board. I'm so sorry that your son has this. Our family ped. was not concerned about the years of constipation or the impacted bowel in March. When he learned I had gastro appt he said, "I think I can handle constipation." - Didn't even...
  9. nicumom

    New here, and looking for guidance please

    Why are the children being admitted to the hospital? For further testing? I don't mean to sound stupid - I just don't know. I was going to login to the hospital website to post and share the test results we have but of course the site is having issues. All I know is they said the protein was...
  10. nicumom

    New here, and looking for guidance please

    Thank you Tesscorm for the post. I wonder why they haven't done an MRI or ultrasound. We saw the gastro in early July - and have been waiting this long for the endo and colonoscopy. Shame that it can't reach the small intestine. How do they get accurate test results? Is there a certain...
  11. nicumom

    New here, and looking for guidance please

    Thank you for the welcome! Of course you may ask me questions! he does not have any joint issues that I know of - he's not one to normally complain and I've always called him our healthy child. Our youngest has asthma. Our oldest (the 11 year old) - his only issue has been constipation over...
  12. nicumom

    New here, and looking for guidance please

    Our son is 11. Back in early March he had severe belly pain - found out he was impacted. Which surprised us because he had recent bouts of diarrhea. We learned of course that with a severe blockage that stool can go around in the form of diarrhea. He has had constipation issues off and on...
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