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Crohn's Disease Forum

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  1. L

    Ready to go back to 'normal'?

    Sorry to hear that
  2. L

    Ready to go back to 'normal'?

    It is because immunosuppressants are supposed to help keep the disease from getting worse in the first place
  3. L

    Ready to go back to 'normal'?

    Yeah I'm on remicade and my small bowel series looked great the surgeon said so seems like it's finally working. One of my surgeons thought I was mis diagnosed and took me off 6mp a few years ago, which I was all for it at the time. But unfortunately that didn't turn out to be true. All I can...
  4. L

    Ready to go back to 'normal'?

    Oh dang that's a lot of stuff to deal with. I just had continued crohns issues post surgery: inflammation, bad abscess, and chronic D (which just started lomotil and it definitely is slowing things down finally!!). Are you gonna start a maintenance med soon? I.e. remicade, 6mp, or one of the...
  5. L

    Ready to go back to 'normal'?

    Valleys - I am in a similar situation as you, maybe a little shorter leave from work/school. I was out of work/college last semester, felt well enough to start part time in November. Then got sick again and had surgery and have been basically at home since. I feel better and am hoping to...
  6. L

    Questions about Lomotil

    Surgeon started me on lomotil today because I've had chronic D since surgery four months ago. He's having me start off with one a day then two a day if that doesn't work. Do any of you take this daily? If so for how long? I read it's addictive, how so?
  7. L

    I don't know anymore

    All I can say is that the symptoms you describe are very similar to crohns. You should definitely find/get a referral to a GI (gastroenterologist) doctor and make an appointment. It's one of their specialties
  8. L

    Feeling lost

    Not that I know of thanks I'll definitely ask my doctor about that. It would make sense
  9. L

    Feeling lost

    How long did you have D after your first resection? The thing that is confusing is that the pain is much better than before the surgery, but I have all the other symptoms. My stool smells very foul and is yellowish. My gas is also very foul. They checked me for c-diff twice but neither...
  10. L

    Bowel obstruction

    The following information is what happened to me personally, but I am not a doctor by any means. With my obstruction I was severely constipated for months. Also the pain got more and more severe. When it became blocked I was on the floor in excruciating pain for up to 30 minutes at a...
  11. L

    Feeling lost

    LindaS - In 2008 I had surgery to remove an anal fissure/fistula. Then just four months ago at the beginning of December I had a resection spanning from the ileum as well as some of the large intestine, removing the ileo valve I think it's called? In total the surgery removed 1 and 1/2 feet of...
  12. L

    Feeling lost

    Long story short I've had crohns for 9 years now. Flared on and off first three years (was in middle school then high school). 6mp put me into remission, my surgeon hdd me come off it four years ago (year 2 of remission). I'm 22 now and have been flaring over a year now. Have had to delay my...
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