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Thankfully, from her last PET scan, Z doesn't seem to have any other lesions anywhere which technically means she is free of neuroendocrine tumours and we're hoping that's the case. These injections should act as an insurance and prevent anything from coming back. In a way, it's a very...

Hello Everyone, It feels like forever since I've been on here but I suppose I just wanted to let you all know about what the outcome was to all of Zoè's testing. The last time I was on, we had no clear diagnosis for Z bar some IBS and something that looked a little funny around her liver...

Hello Again! Sorry that I haven't been by to update in the last day or so. It's been a very stressful and worrisome time. We went by for bloodwork and a repeat scan but had a consultation with the GI first. Given their ages, the girls usually go to appointments alone, but I just felt that it...

She has undergone blood work for celiac. Came back negative. She's also been tested for H Pylori. I've just gotten a call from the nurse practitioner in the GIs office informing me that there appears to be an abnormality on Zoè's ultrasound near her liver but they're not sure if it would be...

The two girls have always been fiercely competitive and Amalie has just taken this to a whole new level. Hopefully things will settle down soon. I'm going to have to sit them down and have a talk, but I feel it's best I plan for this. Saying the wrong thing to either of them will only be...

Thank you all so much. Our GI won't do FC if colonoscopy appears normal. I'm going to try and push for it though. Isn't it amazing that siblings never change, even when they grow up. Zoè is so down today, bordering on depressed. I'm telling her that we'll get to the bottom of it but she's just...

Hi all, It's been a couple of months since I was on. My oldest daughter Amalie was diagnosed with Crohns about a year and a half ago and is now in remission. My younger daughter, Zoè started to display symptoms over the summer months: frequent BMs, severe fatigue, regular nausea, reflux...

She said the colour changes but is usually just a little lighter than stool coloured and looks frayed at the ends and sometimes in the middle there's frayed bits. I really want her to see a GI but she's now convinced that she's got parasites and nothing else. I'm not convinced though.

Hi Guys, It's been a long long time since I was on here, I apologise. Amalie is doing extremely well now. She has her Crohns pretty much under control using a combination of Pentasa and Humira. I'm now writing in connection with my other daughter, Zoè. She's 20 and approached me with some...

Hi All, I really can't thank you all enough for your amazing support and informative responses. When I got to Amalie the other morning I was so completely relieved. The poor thing looked so so sick. She had obviously gotten a lot worse since I had seen her. She has lost 10lbs since I had last...

Hi All, I'm not sure if I'm in the right place. I know it's for parents of kids with IBD but although my daughter is 22 she still feels like a kid to me. Amalie was diagnosed with Crohns over the weekend and is currently in the hospital. Because she is away at College, I'm only getting to go...