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Crohn's Disease Forum

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  1. J

    Stool Calprotectin

    Wow sounds just like the boat I am in. He is having one bad day a week and not even that bad just some nausea and then it passes. The thing that scares me is he has been on Pentasa since April when his stool calprotectin was 50. Now after 4 months on Pentasa, its 190. Thats not really high...
  2. J

    6mp

    Okay doctor wants to put my son who is 11 on 6MP. I am scared to death. Please I need to hear from you guys with your kids experience on this medication. I am scared he will be sick all the time bc his immune system. I keep hearing boys are increased risk for cancer. My dr is not a fan of...
  3. J

    Stool Calprotectin

    Thank you so much for all your help.
  4. J

    Stool Calprotectin

    Yes I keep hearing that MP6 is a risk for boys but my GI isn't a huge fan of mtx. He said it hasn't been around as long and I guess he trusts MP6. I jut really don't know what to do. I just faxed my paperwork to CHOP but they already said I would not get an appt till October and my dr wants...
  5. J

    Stool Calprotectin

    Okay so my GI wants to put my son on 6mp which scares me to death. His calprotectin from April was in the normal range. So what do you guys think. He is suppose to go for bloodwork tomorrow and start next week if bloodwork looks good.
  6. J

    Stool Calprotectin

    Yes I have been hearing that a lot about Pentasa. When he was diagnosed he was mild so thats where we began. I was really scared about stronger meds so we just decided to try this approach first. He really was doing well for the most part. He has some bad days but overall he is a very...
  7. J

    Stool Calprotectin

    When my son was diagnosed he was very sick for two weeks losing weight, etc so they did bloodwork and his asca was high. From there dr did tests and his pill cam study found lesions, etc. I don't know that it has always been normal but I have never had my GI ever say it wasn't. I am gonna ask...
  8. J

    Stool Calprotectin

    Okay well I fell a lot better now. He is only on Pentasa and some vitamins.
  9. J

    Stool Calprotectin

    He has it in his stomach and small bowel. It just says out of range high.
  10. J

    Stool Calprotectin

    Its always been in normal range. He has had 3 done since he was diagnosed and they were always normal. Thats why I am nervous and bc he has been having some issues the last few weeks. Nothing major just a lot of nausea. We call them episodes but they come and go. Also he has not gained any...
  11. J

    Stool Calprotectin

    My son was diagnosed with Crohns in April. He has had a good summer just some issues here and there but good overall. Just took him a few weeks ago for labs. Just got results and they say his stool calprotectin is out of range at 189.2. Can anyone tell me what this means for him. We have an...
  12. J

    Weight gain

    I took stool samples to the lab today so hopefully we will know soon if something is going on. He is being treated by a ped gi. At the time of his dx he was considered mild so this is the course the gi wanted to go which was fine with me bc I was so afraid of the stronger meds.
  13. J

    Weight gain

    He is only on Pentasa 500 mg 2 pills twice a day. He is on Omeprazole also but just takes one before bed. He also takes lots of vitamins. He eats like a horse normally and never stops all day. He was diagnosed as mild when he had his first flair in January. He has frequent stomach aches and...
  14. J

    Weight gain

    Just had another yellowish green bowel movement this morning. Seems a little better energy wise but he just went outside so we will see. His appetite is poor also which is very unusual and yesterday he kept spitting like he was going to throw up all day he was very nauseous which is not...
  15. J

    Weight gain

    No they were great in June, but as I just wrote on another thread this weekend he became very tired and weak, slept a lot and his bowel movements are yellow and green. Not sure is its something to worry about.
  16. J

    Weight gain

    He hasn't had them done since June. We are due to have labs done again the beginning of Sept.
  17. J

    Should I worry

    Okay my son has crohns and was just diagnosed in April. He has had a great summer but this weekend he was extremely tired and slept, kept getting nausea and his stool yesterday and today is yellow and green. It just looks very unusual. Not sure if this is something I should worry about.
  18. J

    Weight gain

    My 10 year old was diagnosed with crohns in April of this year. Since January, he has not gained any weight. He does eat all the time PTL but I am somewhat worried bc he is not gaining any weight. He has had a pretty good summer. Just a few days here and there that he hasn't felt well...
  19. J

    Son recently diagnosed

    Ok new issue last night my son was telling me that something felt like it was pinching him when he was trying to urinate. Then he felt burning and kept feeling like he had to go. I started to worry but now today he is fine again. Just don't know if it is something or just over reacting. If...
  20. J

    Think my 6 year old has Crohn's

    That what was happening with my son when he got diagnosed. He was throwing up on and off for over two weeks. It was just random he would throw up and then be fine. He was probably throwing up daily. The dr put him on Flagyl and probiotic and the vomiting stopped. However, they did...
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