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We are waiting for surgeon team to come pick up xavier from his hospital room for the ileostomy surgery. Anxious, nervous, and excited all at the same time. He is still in pain even on heavy pain meds, diloted and adivan. Hoping and praying it is UC and not crohns, as docs said they should be...

I wish we had the luxury (time and money) to go to UCSF as I have heard it is a great place for sick IBD children, but we don't have either. We did originally go to Doernbecher's childrens hospital in Portland, OR for a few weeks before we were sent here to Seattle so we have had multiple GI...

We are looking at three options right now that I can see: 1. Give another dose of remicade (will discuss potentcy with Dr. prior) 2. Colectomy if remicade does not work. 3. If Xavier has a mutation affecting the Interleukin-10 receptor, then a bone marrow transplant would be needed. This was...

Patricia - Thank you so much for your reply to our post regarding our son. It was very helpful to hear an educated parents advice to what to ask our doctors here at Seattle Childrens. Because of you, we are going to get HACA test and trough levels test done. Cant wait to get the results. I do...

Our son has been on prednisone for two months and has had 3 remicade infusions. The first remicade infusion we saw good results within 24 hours, but the last two infusions haven't seem to do any good. What is your experience with your little girl and methotrexate and humira? Did those work...

My 2 year old son, Xavier, has had IBD symptoms since he was an infant. Doctors first thought the blood in the stool was allergic colitis and/or a dairy allergy since he was being breastfed for the first 12 months. But as time has gone on, he now is suffering from constant stomach pains, 20+...