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Crohn's Disease Forum

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  1. M

    Parents of Pre-Teens and Teens with IBD

    My son is 18 and was diagnosed with Colitis in March of 2013. The Dr. put him on Pentasa and he did OK for the next year until June 22nd of 2014 when he got sick and the disease just spiraled out of control. He ended up in the hospital on July 3rd, had a surgery to drain fistulas on July 4th...
  2. M

    Remicade white stool rashes after infusion

    I know this thread is a bit old but wondering if you ever found out the reason for the white stools? My son has been having them for the last few days. Sometimes all white, sometimes just white pieces mixed in. I have left a message for the GI and wasn't too worried until I googled white...
  3. M

    How did your doc/you decide on the current form of treatment for your child?

    My son was diagnosed after a small flare last year. GI started him on pentasa and it worked great for about 14 months. He had a really bad flare a couple of months ago and the doctor immediately jumped to remicade with imuran. I was absolutely adamant he wasn't taking it due to the increased...
  4. M

    About Crohn's Forum Families

    1. Diagnosis and date of diagnosis? Feel free to include other diseases besides IBD. Originally diagnosed with Colitis in March 2013. Diagnosed with Crohns in July 2014. 2. Boy or girl? Year of birth? Boy 1996 3. Location? Vancouver, BC 4. What procedures has your child experienced...
  5. M

    How long did it take Remicade to work for you?

    I'm wondering if the people on Remicade can give me an idea of how long it took to work for them. My son had a bad flare up that landed him in the hospital for over a month. He just had his second infusion of remicade just over a week ago and is just starting to slowly improve. I have heard...
  6. M

    Risks of remicade in teens and young adults

    Just an update... A month later, he is still in the hospital. Had his first infusion of remicade two weeks ago and second dose tomorrow. Also on imuran and iv steroids. He is improving but not fast enough for my liking. GI thinks we will see a huge improvement after tomorrow's infusion. He...
  7. M

    Risks of remicade in teens and young adults

    Finally talked to the GI last night and he wants to put him on remicade and imuran and stop the imuran after about 8 months. GI says the imuran is the real risk of lymphoma which is why he would discontinue use after 8 months. Apparently imuran keeps the body from making antibiodies to the the...
  8. M

    Risks of remicade in teens and young adults

    I didn't realize t the time that the risk was from imuran a well
  9. M

    Risks of remicade in teens and young adults

    The GI had mentioned remicade and imuran combo :(
  10. M

    Risks of remicade in teens and young adults

    I wasn't too worried about the increased risk of cancer until I saw it was higher in teens and young adult males. He's 18 and falls right in that category. Thanks so much for all the replies. Hopefully the GI will be by to see him tomorrow and discuss further.
  11. M

    Risks of remicade in teens and young adults

    My son just turned 18. Last year he was diagnosed with ulcerative collitis and has been on pentasa ever since which hasn't worked perfect but controlled it so that he could function normally most days. In the last couple of weeks, he's gotten really sick and has anal abscesses. He spiked a...
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