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Can you tell me what you are doing for the partial enteral therapy???

We are in our last couple of days of EEN!! My daughter is so excited she can't sleep. This last couple of months with her not being able to eat has been rough! Although she looks so healthy and has SO much more energy! I can't believe the difference in her. I'm struggling with what her partial...

My daughter has been on 6mp for a year now and really did not get better. She has not grown in a year, not developing and was becoming more anemic. Our Dr gave us the option of adding a biologic or starting EET. At first I thought there is no way that my daughter could give up food for 2 months...

Would steel cut oats be ok do you think?

This helps a lot... My daughter will be over the moon with that breakfast after only formula for 8 weeks!!

My daughter is just finishing up 8 weeks ENteral therapy. She is moving onto partial enteral therapy. The problem I'm having is with creating a meal plan for her. The dietician called me today and said my daughter is the only child that is doing this therapy and she has no experience with this...

My daughter will be starting the 50% formula 50% food in 3 weeks. How is it going with following the list of allowed foods? I think my daughter will just be happy to actually eat real food at that point:) is it hard to eat out?

Her dr wants to put her on 6mp plus remicade. I thought the risk goes up when you are on both?

My daughter is already on 6mp. I was hoping doing this therapy it would help us put off remicade. Her ESR numbers were at 90 and the dr put her on entocort for 3 months and her numbers went down to 40. I will have to talk to the DR because my intentions of doing this were to hopefully not have...

It's been almost 2 weeks and my daughter is doing pretty good. She looks healthier and gained a couple pounds. I'm a little confused on how we transition to food at 6 weeks. I talked to the dietician yesterday and she said at 6 weeks my daughter would get 50% of her calories from formula and she...

When your daughter had her last colonoscopy was she declared in remission? That is so encouraging to hear. I myself have had crohns for 11 years which they found accidentally during an endoscopy for another reason. I've had no symptoms for 11 years. I have a hard time believing that I really...

That's encouraging to hear about your daughter!

What is the SCD?

Broth would be wonderful. The dietician said only a couple jolly ranchers and flavored water like propel. I love the idea of making Popsicles with that! I'm going to find out about the broth... Any children have perianal disease? Our MD is not sure how much the EN therapy will help that? I'm...

We've tried all the shakes and she seems to like the boost plus shakes the best. I'm glad you mentioned that we should not threaten with the ng tube because I did say that to her once. I think she can drink the shakes. They don't taste too bad but having 7 a day for 2 months I feel like we will...

I'm wondering if my daughter would be more successful with this treatment if she had the feeding tube. Her DR just briefly mentioned it. I said no because I thought my daughter could just drink the shakes. Any thought on the benefits of the feeding tube??

We are actually starting the EN tomorrow. It's the end of the school year for her so we agreed to wait until her parties were done. I'm wondering how do you deal with meal time and everyone else eating real food? Did you always have the port? I'm wondering if we would be more successful with that?

What is his 50/50 diet like??

Yes your right.. The Dr wants to keep my daughter on 6mp and add EN. I really to become more educated about all these meds. I figured that a biologic med has more risks. Thanks everyone for your replies. We are starting EN the week!

Thank you so much for the info. It makes me feel better about the biologic meds. I hate it when people tell you all the horrible stories they have heard. It makes me start second guessing myself. Thanks for taking the time to help me out!