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Crohn's Disease Forum

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  1. S

    Everytime I eat I have to use the bathroom so I dont eat anymore

    I think the response to changes in diet differ from one person to other but elemental formula works better . Please try elemental formula like peptamine ( Nestle) or X 28 ( Nutricia).
  2. S

    Everytime I eat I have to use the bathroom so I dont eat anymore

    While on elemental I don't have to use the bathroom multiple times. Started 4 years ago and still on it partially, meaning while I'm at work fir long hours or long travel or activity. Some doctors say it does not work for adults but it worked for me. when I started with full concentration I got...
  3. S

    Everytime I eat I have to use the bathroom so I dont eat anymore

    I had the same symptoms when I was first diagnosed and when I have activity and yes I stop eating while I am out. Elemental diet ( peptamine) helped me a lot. When I'm out for a long time especially when I'm at work I take my elemental with me. Please give it a try.
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    Blood pressure issues

    I am now terrified. What types of bp meds that may cause stricture??. Im on norvasc. Is this safe???
  5. S

    Your Top Comfort Food

    Potato is my number one. :)
  6. S

    Permanent muscle weakness?

    I had steroid induced myopathy last February after taking overdose intravenous steroids. It was very horrible at first up to difficult talking and difficult walking to bathroom. Iam better now but not normal. Stairs are the most difficult. Vitamin D is the only things that worked with me. Orcat...
  7. S

    Bathroom Anxiety

    At first I didn't go out ( except for work) for eight years. I was terrified that I will not find a nearby bathroom. I lost many of my friends during this time . I started to travel out side my city only 3 years ago ( maximum three days). Yes, the most difficult part is the getting out part...
  8. S

    Turmeric supplements,do they help ???

    I had no effect for 6 months
  9. S

    Humira and depression :(.

    Yes I do. But not as worse as prednisone.
  10. S

    Blood pressure issues

    I took remicade for three years. My bp never increased
  11. S

    Has anyone seen an immunologist?

    The immunologist I went to kept telling me I dont have Crohns and it is all lupus symptoms. I tried to convince her by investigation, long history, obstruction etc. At the end, I was prescribed a huge dose of solumedrol ( iv stetoid) much much more of my weight of 42 kg and so I ended by...
  12. S

    Has anyone seen an immunologist?

    I have seen one last year because of humira induced lupus. Did not like it. She did not see the disease as a whole she only concentrated on the lupus part.
  13. S

    Do you get flu vaccine every year?

    I started to have flu symptoms yesterday although I took flu vaccine:(
  14. S

    Blood pressure issues

    At first it was high for me but now it is high reaching up to 160 /100 .
  15. S

    Blood pressure issues

    My blood pressure was always low but started to increase and still. Prednison is known to increase blood pressure but I was not taking it at that time. After few months of high blood pressure, I had to stop humira because it was not effective and doctors thought it is lupus induced by humira...
  16. S

    What's your theory on how you got Crohn's Disease?

    Me too. I think stress was a major factor in causing my Crohns. My first dymptoms started with my residency in a children's hospital with excess both physical and psychological stress. Another major flare was during the first master exams. My f irst intestinal obstruction was during doctorate...
  17. S

    An alternative

    Hi batch, I have both Crohn s disease and cluster headache. My sister have only cluster headache. It is a very interesting theory but I have some concerns about the very high dose. In Egypt, although we,have a lot of sun, we have a lot of rickets in children. Some times in teens. Researchers...
  18. S

    Weight loss

    I am sure I do. Before my diagnosis I lost more than 13 kg over 3 years then another 6 over 5 years.after diagnosis, I gained only 8 kg of these lost. during flare, I can lose 2_4 kg .
  19. S

    Modulen help?

    I didnt mean that the total number of scoops should be reduced, you can simply add more water to the same number of scoops. Just dilute the formula, this is what worked for me at least.
  20. S

    Modulen help?

    I used modulen for nearly 29 months. Soft stool ( and some cramps ) was the usual till I diluted the formula. Just put less numbers of scoops on the same amount of water. Hope this will help.
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