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Crohn's Disease Forum

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  1. M

    Help. Is this a flare?

    And yes he frequently has gastritis symptoms.
  2. M

    Help. Is this a flare?

    Thank you for listening and your suggestions. I think it's so complicated. He has autism too....high functioning but autism. He can't unfortunately have ensure....he's allergic to the corn ingredients in it. He has never eaten soup, well not since he was 2. Sensory issues and it is a HUGE fight...
  3. M

    Help. Is this a flare?

    Hi, My son is 7 and was bumped up to 25mg methetrexate 3 weeks ago from 15mg, added 325 mg ferrous sulfate at the same time, continues on folic acid, Prevacid, and multivitamin. I think he had the stomach flu earlier this week as he was exposed. Home sick Monday, Tuesday, and Wednesday feeling...
  4. M

    Remicade vs humira vs 6MP, med change...help

    So thanks to everyone!! We are starting remicade as soon as insurance approves. I sure hope it helps him as everyone is indicating it helped their kid. Eosinophil esophagitis is now genetically confirmed too so I will continue on a pretty restrictive diet. And lastly the autism. Sincerely hoping...
  5. M

    Remicade vs humira vs 6MP, med change...help

    Thank you everyone!! This really helps.
  6. M

    Remicade vs humira vs 6MP, med change...help

    My son is currently on methetrexate, Entocort, folic acid, Prevacid, and multivitamin. He is 7, diagnosed in January 2015 with Crohn's with inflammation in the small intestines primarily. We suspected the treatment regimen wasn't working and we were correct. His Cal Protectin is still elevated...
  7. M

    New to this med question

    There are no genetic links in my family to aspbergers or Crohn's. I can see some tendencies in certain people in my family for the aspbergers however. But who doesn't have some autistic tendencies. I do know he is sensitive to meds. We thought a few years ago he was having absent seizures and...
  8. M

    New to this med question

    Interesting Catherine. I've never heard of MTHRI mutation. I tend to not do a ton of research on aspbergers especially in the last couple years as it is difficult for me. I will keep this article and look into it more. Thanks again. I joined this site today because I am so frustrated for my son...
  9. M

    New to this med question

    We were on prednisone when he was diagnosed with EoE at age 3. We are in a clinical trial to find out if he really has EoE versus just issues with corn, rice, chicken and liquid cows milk and soy milk. It's a genetic study we got into. Hope it provides more clarity. My hesitation with the...
  10. M

    New to this med question

    I was wondering about neocate. I know when he was an infant, before we figured out what was really going on with him we had looked at it. I'll keep that in mind. Another question. Again I'm just learning about this stuff.... Fevers are a sign of flare too right. Low grade or high? He has been...
  11. M

    New to this med question

    Thanks! Formula is tricky due to the corn allergies. I'm hoping to avoid that but understand it might be an option we need to pursue. It is such a struggle to get anything into his diet. I don't want to eliminate everything and start all over. Whatever is best for him I am willing to try though.
  12. M

    New to this med question

    Inflammation throughout the small intestine.
  13. M

    New to this med question

    I haven't filled out the profile stuff. His meds are Prevacid daily 15 mg, budesonide 6 mg daily (weened down from 9 last week), 1 mg folic acid daily, oral Methotrexate .5 mL, 25 mg/mL weekly, multivitamin and iron drops. He weighs 50#. His labs look better for the most part since the start. He...
  14. M

    New to this med question

    Hi, I have a 7 year old with Aspbergers, eosinophil esophagitis (food allergies to corn/rice/chicken), and 10 weeks ago we found out Crohn's too. He is on several meds but I am really concerned about the Methotrexate. He has a very high pain tolerance and even when bleeding from a fall he will...
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