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Crohn's Disease Forum

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  1. Visual Acuity

    Finally Getting Started

    You were right! there isn’t supposed to be a bump, it was about 1.5” around and about an .5” high, very weird. Yesterday we went to the new local GI clinic, they work with UW (University of Washington) and she said she’s never heard of it before either. Thank you for telling me, I wouldn’t have...
  2. Visual Acuity

    Finally Getting Started

    Thank you for all the time frames. And the good thoughts! Your time frames really help me a lot to know what to expect. For some reason I thought the Humira would kick in first. Maybe because it was the hardest to get approved for. ;) He did really well with the shots, I did have to hold his...
  3. Visual Acuity

    Finally Getting Started

    Hi All, Finally got approved for Humira! Finally A (son) is approved to start his treatment, it’s been so long. Monday he got his first loading dose of Humira, and the MTX shot, plus the second Hep A & B shot. 6 altogether! Both arms, 2 on the tummy and both legs. Poor thing had shots...
  4. Visual Acuity

    Information Overload

    Yes! Thank you thank you thank you! my little penguin! This is so awesome, just what I’ve been hoping for. I just ordered buzzy, What a great idea! and I will call up the doctor for the EMLA Cream. Thank you again SO much! Everyone that suggested a new movie on the iPad, what a great idea. I’ll...
  5. Visual Acuity

    Information Overload

    We had our first GI appt. So much to know about and learn. It’s all so depressing, but I’m really trying to think positive. They are going to put A on Humira & Methotrexate (MTX?) Shots for both meds. I’m really scared of the shots (with his Autism) hoping that he will understand why we’re...
  6. Visual Acuity

    Autism and Crohn’s

    Sorry if it seems I’m flooding the thread! It’s just that you were all so kind to respond to me and give me such support. I wish I could reply to everyone! Suspect you would throw me out though. :ybiggrin: Last one! Cat-a-Tonic, don’t you dare think you are some weirdo! We all have quirks that...
  7. Visual Acuity

    Autism and Crohn’s

    Thank you to all of you for your kindness, and support, it really means a lot, and for your kind thoughts. It helps so much. my little penguin, (I like your name :ysmile:) thank you for the cup information! I ordered one, sounds like it might work for us. I'm hoping. Have you tried it...
  8. Visual Acuity

    Autism and Crohn’s

    Hi, Maya142, my DS is 19 but being at only about 2 or 3yr old level on some things he is more childlike, especially with everything he has to go through. I thought perhaps I could be in this forum because of his disability. Should I move to another one you think? I don’t know for sure. Also that...
  9. Visual Acuity

    Autism and Crohn’s

    pdx, thank you for telling me about your daughter, I’m so sorry you have to go through this, it helped me to know that you had a similar situation, and that I can be hopeful that everything will come out to be better. It is all overwhelming isn’t it, I’m really glad that you’re all doing much...
  10. Visual Acuity

    Newly diagnosed and scared!

    I don’t have much in the way of help, but I wanted to say I’m so sorry about your diagnosis for your son. It’s all so overwhelming isn’t it, We just found out about our son too. I’m still in denial a little bit, mostly just terrified. I’m glad you asked the questions about the meds, I was also...
  11. Visual Acuity

    Autism and Crohn’s

    Autism and Crohn’s Hi everyone, My son has been recently diagnosed as having Crohn’s. In March they thought he might have it. It took until just now to have the colonoscopy and endoscopy, now it’s for sure. He’s disabled with Fragile X Syndrome (similar to Autism), so it had to be inpatient...
  12. Visual Acuity

    Panda Express Corn in Fried Rice

    Just in case anyone is curious, I emailed Panda on the 10th or so, and received this reply back today, cool that they took the time to answer: "Thank you for taking the time to contact us. We value all comments and suggestions from our guests. We apologize for any inconvenience due to our...
  13. Visual Acuity

    Panda Express Corn in Fried Rice

    It's because of the avian flu outbreak: http://www.usnews.com/news/articles/2015/06/12/egg-shortage-amid-avian-flu-outbreak-scrambles-us-food-industries But replacing eggs with the corn is ridiculous. I mean they think people wouldn't notice that it was corn and not eggs. Drives me crazy when...
  14. Visual Acuity

    Panda Express Corn in Fried Rice

    Hi, I’m new to the forum, so I’m not sure where to post this. Over the weekend I took my son to get him some fried rice at Panda Express, which he loves (went through drive-thru) I was in for a shock when we got home, as they are now putting whole pieces of CORN in, mixed with the rice! I called...
  15. Visual Acuity

    My son with Fragile X Syndrome

    Thank you so much for your help! I’ve been reading on the website “pecanbread.com” I’m getting started right away. What an amazing resource it is. Thank you for telling me about it. And I ordered the book "Breaking the Vicious Cycle" that you told me about. I feel like I’m a little more able to...
  16. Visual Acuity

    My son with Fragile X Syndrome

    Thank you both so much! Pilgrim and 24601, this sounds like something that would really work for him. I’m going to go and see right now. Take care, and thank you both again.
  17. Visual Acuity

    My son with Fragile X Syndrome

    Hi, first thank you so much for this forum and for all of your discussions. I’ve been reading here constantly for two months, all of your words of wisdom, and the help you’ve given each other has been invaluable to me. I don’t know what I would have done without this great place to help research...
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