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I believe the reason my GI wants to add mtx is because he is unsure if my daughter has scar tissue because there is too much inflammation to see during the colonoscopy. There is a stricturing but not horrible and she actually has "regular" bowel movements with no Diarrhea. It's always been...

I'm wondering if my doctor had added the mtx while on the remicade if she could have stayed on the remicade much longer. Once there is proof she has antibodies is it too late to get any benefit from the remicade even if we added the mtx? And if we add the mtx (oral by the way because Humira is...

Yes she had her humira levels checked and she has plenty in her system so the GI will not be increasing her dose from every two weeks to every one. The Humira just doesn't seem to be doing the job. She did have antibodies develop to Remicade but not (yet) to Humira. He doesn't think adding...

My D had followup colonoscopy. Expecting remission due to how she was feeling. Didn't get that. Had MRE. Active Crohn's seen even though ALL blood tests show no inflammation. On Humira for about a year which seems to have slowed progression but hasn't improved disease. GI suggests adding...

Buzzy? Never heard of that. But I will definitely give it a try. Our GI has already told us he needs to speak to my D alone. You are so right that kids listen to others more than to Mom and Dad. Sounds like you all think surgery should be last resort. In one way I would agree but I fear...

My little penguin speaks to me with the screaming. My D screams so loud during the Humira shot that our neighbors probably think we are killing her. Knowing that surgery is in the imminent future (hopefully not until summer) I have been scheduling tours of colleges during Spring Break. Clash...

My D refuses to speak to anyone. She says she is fine. She is very active and gained weight and outwardly thriving. Blood tests are fabulous and show no inflammation. That's why results of colonoscopy were so upsetting and confusing. GI Doc seems confused too which worries me. I want him to...

Thanks for your responses. My daughter has been on Humira for almost a year but we are going to go from every 2 weeks to every one. Well, we will try. It hurts so much, even with using ice, taking out of fridge and lidocaine, I know she will have an extremely hard time doing it every week...

New to this. My 16 year old daughter was diagnosed with Crohn's a day after her 14th birthday two and a half years ago. She was immediately put on remicade which worked wonders. She was also put on growth hormone. She gained weight and grew and did great until Remicade stopped working. Until...