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Hi everyone! Sorry, I disappeared for a few days while all of you were trying to help me. It's been a little hectic around here lately. That said, I really appreciate all your feedback and support! Yes, PDX, you're correct. We emailed and called docs and got the same reply- that it'll...

And Maya, I can't thank you enough about the dietary suggestions. You've been such a wealth of info during a very stressful time! Hugs back to you too. Have a good night. (Sadly, I KNOW there'll be many more Qs, lol.)

Hi Farmwife! Thank you for responding as well. You're all fantastic and I really appreciate your help. I hope Grace hits a stride soon and stays in remission for as long as can be. :)

Thank you Maya! You've been awesome!!! CHOP has definitely been hit or miss. For instance, during the week we were hospitalized, several different groups of ppl popped in & out. A nutritionist came by before he had his MRI on Friday 4/8 & subsequently colonoscopy on 4/11 and talked in...

You're right Maya, absolutely. Yeah, the recent CHOP experience wasn't exactly reminiscent of past ones. The nursing staff was hit or miss, the docs on our floor were rarely available - only twice a day, etc. For being the most serious and life changing diagnosis, I thought we were...

Thank you all for your feedback! This is great -- simply because my wife & I have been feeling alone through this process. I also feel like I've been a pain because I've been asking lots of Qs via the portal but this is worrying me. The large fistula isn't normal - also confirmed by a good...

Hi everyone! This is my first post here, on behalf of my newly diagnosed 5 year old son, with Crohn's disease. He received his first remicade treatment on 4/14 after we spent a week at the hospital stabilizing him, I suppose the first official flare-up. His appetite is great, his bowel...