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There was a previous study done by Pfizer (I think) that used higher doses of th 3 anti-biotics. It was not effective. Personally, I am glad that they are using small amounts in the HB-104. If you look at some of the side effects of these 3 drugs, they are frightening. Permanent brown/black...

I agree. My thought has been that if rhb104 is successful is killing off the bacteria, and the MAP vaccine proves effective in preventing it from starting to begin with, then we really will have a cure.

small intestine and upper large intestines. Many ulcers in upper intestine..mostly healed now. Stricture in lower intestine as well. Inflammation in large intestine, hiatal hernia as well.

That is my understanding. My researcher told me that only a few in the trial are reporting the nausea, cramping, diarrhea, etc. We all are reporting the red urine.

I actually asked my researcher about that. She said that yes, they could replicate some of the side effects, but in doing so I would most likely feel them the same, everyday. That is not the case for me.

Hi Guys, I know this is an old thread, but thought I'd post anyway. I am in the Phase 3 trial for rhb-104. I am in my 6th week of the meds. What I know so far: 1) I did get the real med. How do I know? Prior to the start of the meds I had a colonoscopy and blood panels drawn. I have stayed...

There are. Go to Centerwatch.com . It will give u a list of current and upcoming trials in your area.

The original end of the trial was September of 17. But I was just told by my researchers that they are extending the trial until September 2019. The trial report is still to be coming out December of this year when the first of the Phase 3 participants have been on the med for 26 weeks. My...

Update. Got blood work results back today. After 4 weeks in the RHB-104 Phase 3 trial I can say that I am showing major improvement. My C-reactive Protein Level, which prior to the start of the study was consistently over 3.5 for the last 2 plus years is now down to 1.34. Still considered...

RHB 104 Trial Phase 3 update. Got my blood work back today. Prior to starting RHB-104 my C-Reactive Protein level was way high...4.5. Today, after 4 weeks on the RHB-104, it is 1.34. Still considered high, but greatly reduced. This is GREAT news for me in that 1) inflammation has been a HUGE...

You are right. I had to fill out a form for all supplements beyond vitamins that I currently take. Adding any others requires that I inform them, and it could possibly get me kicked out of the study. Therefore I will not add anything during the duration of the study. I am really hopeful that...

Hi Wombat girl! Sorry it took so long to respond...I was on a little vacay. So far so good with the rhb104. Had my 3rd week visit to the research clinic today. Of course, I will not know for sure if I got the real juice or not, but did find out this: 1) My inflammation markers have lowered...

Pentasa has in the past actually worked quite well for me. I believe that a lot of the difficulty I have had in the past year is tied to the stress of an ugly affair/divorce. I had a major flare up shortly after finding my soon to be ex husband was having an affair with my so-called "good...

10 days is indeed a short time...although it will actually be 2 weeks. I should clarify, she wants to see my c-reactive protein levels stop climbing, as they have been for the past few months, despite high doses of Pentasa. I am currently well over the 100 mg/L mark. 6 months a go I was at...

Hello everyone. I am new to this forum, but not new to Crohns disease. I was diagnosed over 10 years ago, after being misdiagnosed with Irritable Bowel Syndrome in my early 20s. I am now 51. I have been on Pentasa, as well as steroids for the past several years. The steroid use has been...