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Hello everyone. Tyler's first treatment went relatively well. He spiked a slight fever, but the nurse was with us the entire time and kept things under control. He experienced some tightness in his chest and muscle soreness over the following two days, pretty common reactions to Remicade...

Well, Tyler had his first treatment last Wednesday. He spiked a slight fever, but the nurse was with us the entire time and kept everything under control. His energy levels have increased, but his appetite is still not quite what I'd hoped for. He felt some tightness in his chest and muscle...

Thank you for sharing your experience. And, we did get great news. It seems the abscess opened up and drained on its own. The surgeon indicated he sees no reason we can't begin treatment. So, we are waiting on a call from the dr to confirm and schedule his treatment. Everyone's reassurance...

Well, we may have had a bit of a setback. After deciding that Remicade and supplementing with EN would be the best treatment option, the GI's examination last night revealed our son may have a newly formed abscess. Very disheartening, to say the least. Unfortunately, we will have to delay the...

If you don't mind us asking; where there any side effects related to the Remicade, that your son experienced? Was he on and immune suppressors or steroids in conjunction with the Remi?

Jmrogers4, Thank you for your reply. It seems you have been exactly where we are right now. I for-see having the same issues with the EEN or EN as well, being that our son dislikes the formulas available to him and going from a few a day to 8, or so, would be a battle. It is encouraging to...

Thank you for posting, pdx. Your words meant a lot, since we are at the same point you were at two years ago. I am so glad your daughter is doing well, all things considered. This will certainly help us in the decision making process.

Thank you for the link. It was very informative.

My boy is currently taking Peptamin Jr in the morning and Ensure in the evening. He really has a rough time getting over the taste of the Pep Jr. He is currently in the bottom 10th percentile in growth. His appetite is has been lacking for quite a while. I think his lack of appetite is...

Thank you all for the replies. Wasn't sure where best to post, so I placed my questions in a couple of threads, then decided to just create my own. It does seem as if "biologics" such as Remicade are most effective and generally bring about remission more quickly. I believe the dr wants to...

Thank you so very much for the reply. Your post is quite reassuring. We see the GI doc tomorrow and hope to make a final decision on which direction to go. I do believe Remicade may be the best possible option at this point, at least in the short term.

Good morning everyone, Our son (age 13) was recently diagnosed with CD. He had developed a perianal abscess which was drained via surgery at the local ER. All went relatively well. After a series of tests, an endoscopy and colonoscopy with biopsies, it is a near certainty that CD is the...

We have had many issues with Blue Cross over the years. What I came realize is the service you receive is quite dependent on your choice of medical group within the Blue Cross system. We had to change medical groups several times until we found one which was organized and put our needs, as...

Good morning everyone, Our son (age 13) was recently diagnosed with CD. He had developed a perianal abscess which was drained via surgery at the local ER. All went relatively well. After a series of tests, an endoscopy and colonoscopy with biopsies, it is a near certainty that CD is the...