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I'm 7 hours away from nearest city and relying on visiting GI. He comes every 6 weeks. This is gonna start becoming really expensive I can see :(. I was diagnosed as having ileitis. From What i can make out that is basically crohns. I'm really not sure why I just didnt get the definitive...

Can a doctor treat you without the diagnosis from specialist? Or it's not their call? I got the impression my doctors hands are tied without definitive diagnosis?

No, they gave results to doc to relay to me. No advice or recommendations. I was tested for celiac but was neg. my calprotectin and inflammation blood test were also normal, strangely enough. So I was lucky to even get colonoscopy. These were both done after giving up gluten and getting a bit...

I had no granuloma so he gave no definitive diagnosis. I was told a couple of holes are quite deep.i have episodes of needing to get to toilet, collapsing, flushing heat sweat, really feeling like I'm on my way out. Worst incident culminated in blood and mucus cramping diahhrea. My care has been...

Yes, gluten free has saved me. I've been gluten free since July last year when I collapsed last. That's helped with 80% of symptoms. I need Zantac each day multiple times. I did celiac panel but came up empty. Inflammation was on biopsy done last month. Yet to even see a GI to tell them...

Have been ill for five years and the care has been a joke. Anyway, finally got camera, endo and colonoscopy. Found Iletis, eroesions, inflammation and holes, some quite deep in small bowel and stomach. I've collapsed, felt I'd die, blood and mucus diahhrea, severe fever, toilet up to 20 times a...