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The doctors have said it’s from the disuse, but also from the disease. Ever since I was diagnosed, the inflammation was mostly in my large bowel and rectum.

I was placed on entyvio after I had my large bowel removed and that made my Crohn’s a lot worse. I was in and out of hospital and now I know that because it doesn’t work for the small bowel. However at that time my doctor who did a lot of research and trials for IBD, said that I had to be on it...

I have had a total colectomy done when I was 18 which it would be exactly 10 years ago, but they kept the rectum in hoping that I could do a pouch surgery. This was back when they thought it was ulcerative colitis. When I was booked in for the surgery about a year after the colectomy, my surgeon...

Not necessarily just from Stelara, but also from other medications and from the Crohn’s itself. When I was back at school, I was on remicade, azathioprine and asacol and I struggled at school due to the brain fog. As for the stelara that I’m on now, I know that I have to have a break for a few...

I myself am on stelara and have been since 2018 and I experience all the symptoms that you’ve mentioned. One thing you’ve got to remember is that chrons is an autoimmune disease. So the back pain, the dryness of the eyes, they’re all related to the disease. I’ve seen the ophthalmologist multiple...

I actually forgot about this site until a few days when I was looking through my junk emails and it popped up on there. I remember being somewhat active and was wanting to find people to connect with who have IBD. A lot has changed with me. I managed to graduate at the top of my class last year...

I think it’s what your body can handle. Like what causes flare ups and the upset stomach. Each person is different. Some say that a vegan diet will help. Some will say a gluten free diet will help. I think it’s what you can handle and what your body can handle. I’m a 23 year old woman having...

I was only on Humira for 8 weeks and then I had to abruptly stop it as it was giving me chest pains and shortness of breath, low oxygen levels. And also numbness down my right side of my body. I was hospitalised twice because of the chest pains. I am asthmatic so they didn’t know whether it was...

I was 9 when I was diagnosed (22 now) which was back in December 2005, but I remember it just like yesterday. I started having abdominal pain and then severe diarrhoea. This carried on for a week until blood started to come through with the stool and at that point I was going to the toilet about...

Hi Michael, Luckily I’m in the U.K. so the NHS pays for it. But I did have to try all the other biological medicines before I was put on stelara. So when they all failed, my consultant put me on Stelara. I went to the appointment last week and my consultant has referred me to dermatologiy...

For me I can’t drink freshly squeezed orange juice as it causes severe heartburn for me. And do the pain is unbearable and it does cause inflammation for me in my stomach and in the small bowel, so I tend to stay away from it. And it’s the same with any other acidic fruit and juice

It is winter here and usually when I do have flare ups of my eczema is that I have them on my arms on the inside of my elbow. In order for me to see a dermatologist I’ll need to go back to the GP so he can refer me to the hospital. But I’ll mention it to my gastro consultant and see if he can...

deleted reply and replied with quote underneath. Still trying to get used to forum

Hi, I haven’t been on here in a long time. I started stelara back in April and it has been nearly a year since I have been on it. However, since the dose I have taken in December (I have taken another dose last week) I have noticed that there is dry skin under my right eye. It is red and is...

I took Humira for 6 weeks back in 2016 before stopping it due to numbness on to the left side of my body. My left arm was tingling and my left leg was badly affected that I ended up dragging it when I was walking. My consultant referred me to a neurologist and did a MRI on the brain. Luckily...

Have you got Crohns or Colitis? When I started Remicade 4 years ago I was on 200mg of azathioprone. I was first diagnosed with crohns when I was 9 (21 now) and the doctors put me on 50mg azathioprone and 2400mg of mesalazine with prednisone. Back then I did feel nauseous and loss of appetite...

I’ve got Crohn’s disease and and have had it for 13 years now. Ihave had multiple mri scans and ct scans and usually I have them with contrast as it does give a better picture of your large and small bowel. However, some mri scans I have had done were done without contrast as they focused on my...

So I just started Stelara last Friday as it was a last resort after being on vedoluizmab for 6 months. However in the last few days, I have been feeling extremely tired. I have pain all over my body and sometime struggle to get out of bed. I do have exams and deadlines coming up as well, so that...

I just started Stelara yesterday as for the doctors and me it’s the last choice of medicine for me. Back in 2014, I started Remicade as I was complaining of abdominal pain and I was on tablets for many years but they weren’t working as strong as when I first started them. I was on Remicade for 8...

So I’ve been prednisone for the past 5 weeks as I had a bad relapse before Christmas and was in hospital for two week (I was released two days before Christmas though) and it has been tapered down. I’m currently on 20mg and have been for two weeks. The doctors want me to stay at 20 for a month...