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My 16 year old son who was diagnosed this last April has extreme sensitivities to cold and heat. Sometimes he will dress so warmly when it is 110 here in Sacramento. He seems to be cold all the time. Then on a day like today he will go for a short walk when it is about 90 degrees and nearly...

Hi all! So my 16 year old son just finished his 3rd Remicade treatment and I am pleased to say he has gained 32 pounds since starting! So his GI doc called a couple days after the infusion and the blood work they took before starting the infusion showed elevated liver levels. What does this...

Hello! My 16-year-old son starts Remicade infusions tomorrow and I have a couple/few questions. 1. Will he be immuno compromised after starting these? If yes does he become more so after every infusion? 2. Will we see any positive change after the first infusion? 3. Any common side...

Hello all, My son, Aden (16 yrs) was recently diagnosed with Crohns within the last few weeks. His GI wants him to start Remicade infusions but is doing a MRE (Magnetic resonance enterography) to make sure there are no strictures in the bowel. If there are, she will want to do surgery first to...

Thank you so much for this information! So valuable!

Oh my gosh! Day before yesterday Aden started complaining of lower back pain! I am not sure what to do. I feel bad for him! Tell me more about the lower back pain.

Thank you! How about joint pain everyone? Do your teens complain of it?

I am looking for a high protein high calorie breakfast smoothie made with coconut milk and honey?

Thankyou Jacqui. Aden is 5 feet 10 and is down to 117 pounds. I have a question. How can the Dr.'s tell if our kids are in remission? Is remicade something that is continued even after remission is achieved. Did any of your kids have a MRE to help with baseline? Aden is on: Alinia...

We will see her on Wednesday. I will bring that up.

Ricky what is the apple cider vinegar used for? How much weight did your kiddos lose before you started panicking. My son started at 135 (his highest) and is now at 117. We didn't start worrying until I found out he had been having lots of blood in his stool. We went to the ER and were...

OK, so apparently Aden has h pylori. Hence the heavy duty antibiotics. Yes, his PEDS GI said Remecaid for the infusions every 4-8 weeks. My son never complains that much. He seems to be doing ok on Doxycycline and Levofloxacin. We have made a huge change in diet. How about you?

My daughter had to show me how to add a signature to include medications. I think I did it. We started a IEP process. He has missed so much school that the assessments have not all been completed. I hope they will be by the end of the school year. What about summer school? Have any of the...

I have so many questions I don't know where to start. Let's start with school. Aden has missed most of the year already. Did you all experience this and if so what did you do about make up and future school days. When on antibiotics, do you incorporate pro-biotics into their regimen?

Hi all! New to this all! My boy, Aden, was just diagnosed with Crohns. He is 16 years. We are going through a whirlwind and don't quite know what to do. I am looking for support, advice etc. Thankyou!