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Crohn's Disease Forum

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  1. undone

    Microbiome Breakthrough: New Crohn's Treatment Unveiled

    No, I didn't. You already summarized it, so I didn't feel compelled to do so since my post was simply a comment based on my limited experience with FMT.
  2. undone

    Microbiome Breakthrough: New Crohn's Treatment Unveiled

    I know someone personally who underwent FMT almost 4 years ago now. The procedure completely failed and she needed to have emergency surgery to repair an absessed colon. She is still wearing a bag and hopes for a reversal when she is healed enough to handle it. No, thank you, FMT.
  3. undone

    Bad scope

    Diet is only one way to control Crohns. Have you considered trying "natural" medicine to treat Crohn's? There are many organizations out there that are dedicated to helping those with IBD using natural means. I joined CrohnsColitisLifestyle (dot) com founded by Dane Johnson in June 2021 and have...
  4. undone

    Hotel Crohn's Forever, The Return Of The Fistula

    @thike1966 My first reaction to your post (besides empathy) is YOU'RE A GOOD WRITER! Do you find writing to be therapeutic? If so, keep writing - I will read it, and I bet many others will, too. Loving ourselves is huge. I think many of us with chronic diseases tend to self-hate. I struggled...
  5. undone

    Urgent diarrhea

    It is always good to test a binder to be sure there are no issues such as those you mention. Honestly, though, I've been using binders daily for 3 years now and have not had a problem. What HAS bothered me is taking a powdered collagen supplement. I've learned THE HARD WAY that collagen is what...
  6. undone

    Urgent diarrhea

    Other binders in capsule form that I've found to be very helpful: CellCore's BioToxin Binder - https://cellcore.com/products/biotoxin-binder Biocidin Botanical's G.I. Detox+ - https://biocidin.com/products/gi-detox-zeolite-charcoal-herbal-formula Both of these companies offer an array of...
  7. undone

    Urgent diarrhea

    Rules for Using the Bentonite Clay Psyllium Husk (BCPH) Shake: Must be taken 60-90 minutes away from any supplements or food. Must drink 8-16 oz of water along with it to ensure proper movement through GI Tract. Can be made with a little organic apple juice or lemon juice if taste is...
  8. undone

    Urgent diarrhea

    Are you using a binder? As a 50-year Crohns "warrior", I've found taking a daily binder has been a game-changer for me, especially in the area of loose, urgent stools. Bentonite clay, charcoal, GI Detox... there are many products on the market that can help in this area. Here's a "how to" video...
  9. undone

    Vitamin D and Crohn's Disease

    What brand of liquid Vit D are you taking? I'm on "liquid" liposomal Vit D, too, and it is definitely improving my Vitamin D level. Makes me wonder about the quality of the one you're taking.
  10. undone

    Vitamin D and Crohn's Disease

    Here's an interesting video from Dr. Campbell explaining the new research and dosage for Vitamin D based on the evidence:
  11. undone

    My journey to getting well

    I avoided garlic for years. When I did consume it, I became very gassy. What I've come to realize is garlic is an anti-pathogen and it was causing a herxheimer reaction. I've slowly reintroduced garlic into my diet and now I do not react as I did.
  12. undone

    Vitamin D and Crohn's Disease

    I have the same problem with absorption, aga. My terminal ileum and the surrounding bowel has been surgically removed. That is why I try to take supplements that are liposomal if possible. I'm currently taking Designs for Health brand Liposomal D (includes Vit K), along with QuikPlus' Trace...
  13. undone

    Vitamin D and Crohn's Disease

    I was surprised to find my vitamin D level at 17 in Feb 2021 shortly after having bowel resection surgery. I was then retested in 2023 and was at 31. These two tests were done during a time when I was taking a a daily dose of Vitamin D supplement around 1000 - 2000 IUs. Obviously, this lower...
  14. undone

    Has anyone tried Wurn Technique?

    I'm seriously considering it. My health coach has been coaching a client with Crohns who has gone to the clinic, had the therapy and claims to have had great results! I've had two bowel resections in my lifetime and am prone to strictures and obstructions, dealing with two obstructions over the...
  15. undone

    Vitamin D and Crohn's Disease

    There is a lot of history within this post and it's possible someone has already mentioned this book about Vitamin D: "The Miraculous Cure for and Prevention of All Diseases. What Doctors Never Learned" by Jeff T. Bowles. The title infers quite a promise, but there are many testimonials...
  16. undone

    This has destroyed my life.

    Where do you source your powdered melatonin? How much VitD3 are you taking and where do you source it? Thank you.
  17. undone

    Whole Food Plant Based diet (WFPD) - with a one-month diary template for sharing your results

    Do you peel your broccoli? How about deseeding and skinning your tomatoes? That would reduce the amount of insoluble fiber as well as reduce lectins that are difficult to digest. I'm not taking inulin, but am starting Natren probiotic powder to regulate the amount.
  18. undone

    Whole Food Plant Based diet (WFPD) - with a one-month diary template for sharing your results

    westernbuddy, I realize diet is not a cure. As my surgeon said to me when I explained to him that I had tried through the years to control my symptoms with diet, he replied "Crohns doesn't care". I believe the same is true for traditional medicine: Crohns doesn't care. There is no guarantee meds...
  19. undone

    Whole Food Plant Based diet (WFPD) - with a one-month diary template for sharing your results

    Thanks for starting this thread, Waldo. I've had Crohns for 44 years. Been on lots of meds. Had two bowel resections, the most recent last Feb. Once my bowel healed, my GI doc wanted to start me on Entyvio every 8 weeks for the rest of my life. I decided to do more research, then stumbled on the...
  20. undone

    PLANT BASED DIET ? (Seems to be working for me)

    Thank you so much for sharing this information. I was unaware of Dr. Alan Desmond's studies and plan to share this with my GI doc, along with other information I've found to support plant based diets for the treatment of Crohn's and other IBD diseases. A little about me: I am 65 years old and...
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