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I have actually never heard of EEN, but plan to look into it!

So, I actually started calling around last week about getting a second opinion. I had discussed going to Boston with our GI, but my Florida Insurance won't cover anything. But Boston Children's does some great research there on VEO IBD. There is a children's hospital in Jacksonville that we...

So we are currently on 10 MG of Prednisone daily. His last scope was in the beginning of 2017. He did have some inflammation at the time. I'm not sure why they keep ordered stool studies while he is on the steroids but I just do what they ask. They always do a C-Diff even when I know that is...

My son has been on Prednisone since October. In 2016 he was on prednisone for 6 months, with salumedrol by IV during hospitalizations.

So I am new to this forum, but am just getting to be very frustrated with our doctors. My son will be 7 on Thursday, we have been on Remicade since August of 2015. We have been hospitalized three times since then. twice in 2016 and once in 2017. From what I understand he is on the highest dose...