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  1. M

    Waiting for GI appointment

    Here is the rest of the appointment summary.
  2. M

    Waiting for GI appointment

    Post appointment update: We had a great first appointment. Kaleb is being seen at Peyton Manning Children's hospital. The doctor is very kind and thorough. The appointment lasted nearly two hours. She took time to make sure she understood our concerns and to make sure we understood her...
  3. M

    Waiting for GI appointment

    Just an update - I called the gi today to ask if there had been any cancellations or if there was any way to get the process started before my son's 1st appointment in 7 weeks. They said no but if our primary doctor called them they could tell him what to order. I emailed our primary doctor...
  4. M

    Waiting for GI appointment

    My older son is allergic to basically everything that creates pollin, mold, dust, and corn (food). We've been doing immunotherapy with him for a year and a half. Because of Kaleb's ADHD and the fact that all of the IgE's that weren't in the normal range were very mild we chose not to go to...
  5. M

    Waiting for GI appointment

    We can't get into the gi until August 30th. That seems sk far away right now.
  6. M

    Waiting for GI appointment

    It was an IgE. I've attached the Wheat IgE and hemoglobin, which was 14.
  7. M

    Waiting for GI appointment

    IgE response to wheat - a food allergy. I haven't personally talked to anybody at the GI office yet. Our doctor's office scheduled for us. Our family doctor ordered a slew of labs to try to narrow down what was going on. The results indicated a mild wheat food allergy. Though he didn't seem...
  8. M

    Waiting for GI appointment

    Thank you everybody. I really appreciate your reassurance, advice, and support. This is a scary world we've walked into and I'm so unfamiliar with it.
  9. M

    Waiting for GI appointment

    We eliminated gluten a month ago when his labs showed a mild gluten allergy. He has been taking probiotics since April. None of that has made any difference in his gut health. Would you continue to eliminate gluten and give the probiotic or step back from those things so the GI can get the...
  10. M

    Waiting for GI appointment

    I prayed just now for peace for your family, comfort and healing for your daughter, and wisdom for her doctors. The waiting is so hard. If we knew what it was we could have a plan of action but when we know nothing we have no choice but to wait it out and let the problem persist. We did...
  11. M

    Waiting for GI appointment

    Just curious what symptoms caused you to go to urgent care if you don't mind sharing.
  12. M

    Waiting for GI appointment

    Since he's had the ct with entography is there any need to do the mre? I'm not sure why our doctor ordered the cte vs mre - maybe because we could do it locally (we live in rural Indiana so medical things generally mean traveling) and it is a faster test (Kaleb has ADHD-combined so being still...
  13. M

    Waiting for GI appointment

    He was positive for lactoferrin ALT - 15 AST - 23 CRP - <1 I'm sure we have results for the others - I just can't find them. There is no evidence of bacteria or parasites in his stool samples. Most of his labs have been in a normal range. One thing that did catch my eye was his WBC - it...
  14. M

    Waiting for GI appointment

    Our 5 year old has been suffering with GI symotoms for a long time - but it has been persistent and progressive since April. In April he got really sick with what was diagnosed as gastroenteritis and infectious colitis. He was extremely sick for 2 weeks and have to have fluids twice during...
  15. M

    Any advice?

    Thanks so much for sharing your thoughts and encouragement. It's been a long few months and I'm thankful we are connecting with a gi and look forward to getting some answers.
  16. M

    Any advice?

    Hi there. My 5.5 year old has had persistent gi issues since the beginning of April. He got very sick for 2 weeks with what our family doctor and the ER doctor determined to be gastroenteritis and colitis. His stool samples and labs all looked ok but he had bloody diarrhea, a fever for a...
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