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Crohn's Disease Forum

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  1. M

    The Body & The Bedroom: An Exploration of Crohn’s Disease and Intimacy Graduate Student Research(IRB #24-008)

    Just a suggestion, but you might get a better response if you use age as a data point rather than a qualifier. A lot of younger folks may be more embarrassed or reluctant to speak of their experiences than someone a few years older. You could then attempt to identify trends between age demographics.
  2. M

    Humira and side effect what to expect

    I've been on Humira about six years now. I haven't had any noticeable side effects.
  3. M

    Cronh's and Sleeping & Tiredness - common ?

    Get your doctor to check your Vitamin D, Vitamin B12, and iron levels.
  4. M

    Life Cut Short by Crohn's Disease

    I'm familiar with Nicky Hopkins and his work. A very talented individual who was cut down way too soon. Another one that comes to mind is Lew DeWitt, one of the founding members of the Statler Brothers. He had to leave the group in 1982 due to the progression of Crohn's and he passed away about...
  5. M

    Dating at 40 with Crohns

    I've been married for nearly 20 years to my wonderful and understanding wife. She's been there with me through the best and worst of the disease. There's times I feel I wouldn't have made it this far if it hadn't been for her. She's had to make sacrifices, but she understood what she was getting...
  6. M

    VSL#3 probiotic. Opinions

    Probably unrelated, as VSL-3 is just a supplement. If you're seeing more blood, contact your GI ASAP.
  7. M

    12 weeks from starting Humira and still got symptoms

    When you started, did they give you a "loading dose"? I want to say I was given three or four shots in the beginning, then one weekly, then one every other week. It took about two or three months before I really started to see a difference and feel better. I'd give it a little more time, then...
  8. M

    Diarrhea question

    When I was at my worst, taking Imodium or even Lomotil wouldn't even slow it down. It's best to try to get at treating the root cause instead of just treating symptoms. I'd recommend talking to your GI. If you don't have one, your family doctor needs to refer you to one.
  9. M

    Organising a holiday and Crohn's

    I would also recommend trying to find a place that has a small kitchen so you can prepare your own meals. If that doesn't work and it's only for a few days, pack some non-perishable "safe" foods that you know you won't regret eating a few minutes afterward.
  10. M

    VSL#3 probiotic. Opinions

    I tried it several years ago when (I think) it was being made by a different manufacturer. I took it for about five months and I couldn't tell that it did anything for me. Your mileage may vary, though.
  11. M

    Covid vaccine booster

    You should be much more worried about what those "vaccines" may be doing to your system versus any virus. The best protection against Covid, or any other contagious disease, is natural antibodies.
  12. M

    Can't take prednisone!

    Corticosteroids are never meant to be a long term solution. So many doctors mis-prescribe steroids to people with Crohn's. It's supposed to be short term (3 months or less) to try to break you out of a flare. But, many leave their patients on it for longer than the recommended timeframe. I know...
  13. M

    Psoriasis

    It's common in people who have Crohn's. I've had psoriasis for years. Mostly on the scalp, sides of my face, elbows, and knees, but when I would have flares, I'd have patches pop up in various other places. On Humira, I've noticed that it's now mainly sticking to my scalp. My GP gave me a...
  14. M

    Covid vaccine 3rd dose?

    That "little needle poke" has had catastrophic effects on many people. As of 23 August in the VAERS database maintained by the U.S. Government, there are 514,270 adverse reaction reports to the COVID vaccine and 5,118 documented deaths. These are only the instances that have been documented...
  15. M

    Covid vaccine 3rd dose?

    Even the hospitalization numbers can be misleading because they are taken out of context. The friend I mentioned earlier who works in a hospital told me two days ago the medics brought in a 93 year old lady who was experiencing complications related to congestive heart failure. She was admitted...
  16. M

    Denied coverage for Remicade Aug. 2021

    I agree on the appeal. Oftentimes, the first bean counter that a claim lands in front of sees the number and has sticker shock. I had to do this with one of my endoscopies a few years back.
  17. M

    Rectal bleeding

    I would hold off on the fiber as well until you see a new GI (or multiple new GIs). Cutting down meat, especially red meat and any processed meats, is not a bad idea but you will still need some protein. You can get some protein from nuts if you are able to eat them, but be sure they have been...
  18. M

    Covid vaccine 3rd dose?

    As an engineer, I can say based on my 22 years' experience in the field that ANY product, I don't care if it's an engine, radio, computer, pharmaceutical, or whatever, that is rushed through development and testing is going to have problems. Some problems are minor, some are major and many take...
  19. M

    Rectal bleeding

    That was smart not to wait. Hopefully they'll be able to figure out what's going on soon.
  20. M

    Feeling a bit let down...

    Glad to hear the numbers are looking better! I was hoping it was only an outlier. Hopefully the scope goes well and you'll be declared in remission. It's a wonderful feeling, let me tell you!
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