• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. L

    Pain in tailbone area

    What a coincidence I should read this. My daughter with crohns has had the same problem for the last three weeks. Her pain is only when she stands up from sitting on chairs, mainly the hard seats at school. Once she is standing the pain dissapears. Also happens if she moves around in her seat...
  2. L

    Recently diagnosed with Crohn's

    The consultant prescribed Vitamn D and Folic acid but that was only because her levels were low on those, she has been on and off those vitamins throughout the 3 years. Finding a treatment that works is what kicks growth back into place. Hope this next treatment will help your sons growth.
  3. L

    Recently diagnosed with Crohn's

    Sorry to hear the humira didn't work for your son. What works for others may not work for some. Humira is the only treatment my daughter has been on for over 3 years and it has kept her in remission for that long. Hopefully this next treatment will be the wonder drug for your son. Wishing...
  4. L

    Awaiting diagnosis - discussing results

    Hi deepbluewave I think I have sent you a private message if I have done it correctly. Let me know.
  5. L

    Journey

    Great thank you so much for all the info.
  6. L

    Journey

    It is really good that you are having scopes. All can look quite normal with scopes but the biopsies can tell a different story. Let us know how you get on.
  7. L

    Journey

    Yes definitely biopsies are what gives a definite diagnosis. Being on steroids won't make any difference to the biopsy. Really hope you can get some answers.
  8. L

    Journey

    I am guessing when you have the lower and upper scopes that you will have a biopsy too! It will be the biopsy that will give the diagnosis. So frustrating when doctors put stomach pain down to aniexty.
  9. L

    Awaiting diagnosis - discussing results

    Hi. How are things with your son now?, Has he had his first appointment with the gastro team? I m from the UK, I have 15 year old daughter who was diagnosed with Crohns 3 years ago. I can run you through the whole process of getting my daughter diagnosed and treatment leading to remission.
  10. L

    Hi, I'm from Birmingham UK. Are you any further with your sons diagnosis?

    Hi, I'm from Birmingham UK. Are you any further with your sons diagnosis?
    • Lizzyg
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  11. L

    Recently diagnosed with Crohn's

    My daughter age 15 is also on fortnightly humira, no other medication. She has been on humira from diagnosis. Her calprotectin has always been 30. In the three years of being in remission she has grown over 4 inches and has doubled in weight. This didn't happen over night it was quite a...
  12. L

    Covid vaccination for teen kid

    What a lovely young girl. Lovely dress😁
  13. L

    Covid vaccination for teen kid

    Anyone under 18 in the UK are a long way off having the vaccine until further research has been done.
  14. L

    Treatment not working???

    Wishing your son all the best with humira. It has been a life changer for my daughter right from the first treatment, the difference after the first couple of injections was very effective. Humira put her in remission and has kept her that way for over three years.
  15. L

    Success Stories

    I guess really I should post my dauguters story. It has been just over three years since my daughters diagnosis of crohns disease. She was very poorly on diagnosis with all the usual symptoms. She was put on a course of steroids and then onto Humira. She has had no symptoms of crohns what so...
  16. L

    Success Stories

    You must be so proud of your son and so you should be. It sounds like he has grown into a very independent young man. Well done for getting him there. X
  17. L

    Son, newly diagnosed

    Great I know you will be very welcomed to the group. I am just in the middle of colouing my grey roots. I will work out how to private message you when I'm done. Keep a look out.
  18. L

    Son, newly diagnosed

    Hi again, Of course it's very daunting and all very new for you. Good to hear you are from the UK too! I run a support WhatsApp group along with another mum. It started with just the two of us just over a year ago. We now have over 30 members. Most of us are from the Midlands but not all...
  19. L

    I got my PhD today

    Wow!! What a fantastic achievement for you. Congratulations and well done. Us parents need to hear more stories like yours. Thank you for sharing and good luck for your future. X
  20. L

    Son, newly diagnosed

    Hi So sorry you find yourself on this group but it is a very good group and full of experience with Crohns. My 15 year old daughter was diagnosed with severe crohns Dec 17. She too had been poorly for 12 months prior to diagnosis. I was terrified as I didn't know anything about IBD. In fact...
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