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My partner has Crohns Disease and has been taking Stelara about 8 weeks now. We started noticing he was losing patches of his beard, eventually he shaved it off completely. Now he has started to lose hair on his head as well. It's too soon to know if the treatment is working but he's terrified...

Thank you for sharing, there is so little information and I don't trust our doctors much. We agreed he will only take Humira for a few years max while we have a family, as some of the other treatments can cause infertility. I hope you find a better treatment! It is a horrible condition

Thank you, that was really helpful! He isn't on a combination treatment as I know that can increase the risks. He is only 34 so I'm still terrified, but if this works it would be worth the anxiety

I'm so sorry to hear that. Did you take any other treatment with Humira? I think there is higher risks with combination treatments. They told us the chances of Lymphoma were almost none!

My partner just started Humira, first loading dose yesterday. He is experiencing some awful side effects :( Extreme nausea, joint pain, burning pains in his abdomen. He said he hadn't been in this much pain since surgery. Did anyone else experience initial side effects? Did they stop over time...

Thank you for your advice, they do say the life threatening serious side effects are rare and that biologics put many crohns suffers into remission. It's just a shame there is so little research available at the moment

Thank you for sharing your experience with Humira. I hope your son is doing well on Stelara

My partner has had Crohns disease for about 5 years now, he's tried numerous treatments (including surgery) without any success of achieving remission. He has been recommended Humira, but we are both terrified of the risks involved...cancers and lymphoma, especially as he is mid thirties and...